Hello my name is Mindy. I have not posted on here much but just need to vent a little... My Dad was diagnosed this past summer with HD. I am 29 and I have 4 boys under the age of 10. Life has been super stressful this past year with my Dads diagnosis plus my husband was diagnosed with brain cancer about a year ago which is still an ongoing battle of ups and downs. I work full time and have bby farrisml - Huntington's Disease Support Center
Actually because it's a closed group, it will not show up on your FB. Trust me I tested it out because we have not announced my Dad having HD to everyone yet. I had my sister look to see if it showed up on my FB page and it doesn't. The only people that can see it are people who are part of the closed group. So you can post, comment and do whatever on that page and nobody will know except tby farrisml - Huntington's Disease Support Center
Hello I am VERY new to this site but I don't feel like I get many responses either. If you like to have lots of interaction you should get on Facebook and join a closed group called "Huntington's Disease Support- The Good, The Bad, and The Ugly". If I post on there I instantly get TONS of comments and responses. There are soo many people on it. It's a great place to get lots of infoby farrisml - Huntington's Disease Support Center
Very interesting question.... I currently have life insurance and LTD through my employer. I am now officially 50% at risk since my Dad tested positive a couple weeks ago. I now wonder if I should look into getting a different life insurance plan in case I do test positive assuming I will lose the coverage I have if I am unable to work down the road. Also wondering about my children as I haveby farrisml - Huntington's Disease Support Center
My Dad is doing ok. We all knew he was going to test positive because he had so many of the symptoms. In my opinion, he is in middle stages but waited until it was affecting his job to be tested. He is no longer able to drive and stuff. My Mom says that he is feeling guilty about possibly having passed it on to us kids. My Dad does not disclose any of this to us though... has never been theby farrisml - Huntington's Disease Support Center
My Dad just got his test results this morning. Positive with a CAG of 42. Feeling rather numb at the moment..... wish I wasn't at work....by farrisml - Huntington's Disease Support Center
Thanks everyone! My husbands MRI went great! The radiation oncologist says he is very optimistic that treatment was successful. Now we can focus on keeping my husband cancer free and learning more about HD if they officially diagnose my Dad on Thursday. This journey is only just beginning.....by farrisml - Huntington's Disease Support Center
Thank you for the well wishes for my husband. He has his MRI today and we get results tomorrow so cross your fingers that it looks good! Yeah I have been doing ALOT of research the last few months about HD. I never seen it first hand, because we are not very close with my Dad's side of the family. Right now, besides my Dad, the only living person I know with it is my uncle who liveby farrisml - Huntington's Disease Support Center
Thank you Liz! I am loving this forum already. -Mindyby farrisml - Huntington's Disease Support Center
Thanks Mikee! I have already learned so much just browsing in here.by farrisml - Huntington's Disease Support Center
Hello all- I am so excited that I found this forum! My Dad is finally being tested for HD. He had his blood drawn last week so we are anxiously awaiting results. My Dad's family history is a little crazy because he did not have much contact with his Dad after he left at 18. My Dad's father was a very abusive, unpleasant man whom I nor my siblings never met. He was diagnosed with demenby farrisml - Huntington's Disease Support Center