Barb, some of us in the States are jealous of your system in Canada, and not just because of HD related care! My girlfiend's brother takes part in research being conducted by the Vancouver COE and has done so for many years. I knew the higher incidence rate of HD in BC - but thought (erroneously) that that rate of 1 in 6000 applied throughout Canada. Jimby RevJim - Huntington's Disease Support Center
Thank you for your response Barb. Back in 1961 when I was a sophomore in high school, my girlfriend at the time informed me that her grandmother was recently diagnosed as having Huntington's Disease. Ever since then I have read articles on Huntington's Disease when I ran across them in the psychological literature. (I majored in psych for my undergrad degree, and then pursued a Ph.D. in a psycby RevJim - Huntington's Disease Support Center
Here is something I can beat my chest about - not in pride but in frustration, and I seldom see much written about this problem within the HD community. We all talk about the need for research to find effective treatments and a cure for HD. The corrollary is that with increased research, there is also an increased need for research subjects - and the available pool of such subjects is numericaby RevJim - Huntington's Disease Support Center
JFB, understood. Howard, they also raised funding for some, or initiated funding to new medical centers. Some centers did receive cuts. Here in Washington, the COE received an increase to expand its support to a group in Oregon, where there is not currently a COE. Normzach, you are of course correct that there are people who are fed up with certain policies, practices, and personnel in HDby RevJim - Huntington's Disease Support Center
Something that I believe all posters on this thread have overlooked is the role that HDSA plays in having a number of Centers of Excellence located in various states. True, not every state has a center, and some centers are better than others. On the other hand, without the HDSA providing grants of about $50,000 per center, they would not exist. Everyone would be forced to rely upon a local phby RevJim - Huntington's Disease Support Center