Hi all - So one of the basic rules I have found in Forums, is search first. I did a search for Cymbalta and got one hit. Today has been a crazy day with my SO. She has been so tired and fatigued for a couple weeks now. I have been going back and forth with the neurologist for days now and finally got her to accept taking an anti depressant. He has prescribed Cymbalta. The one post thatby caring4hd - Huntington's Disease Support Center
Thank you so much for the replies to all. I feel a little better, but of course, the proof is when we start moving towards getting these things in place. I am in TX and I am finding it very frustrating, the lack, as Howard said that the medical community even knows how to spell HD (just the initials) (ok I exaggerate a little on that) Every time we have had to call EMS, I have to educate tby caring4hd - Huntington's Disease Support Center
normzach Wrote: ------------------------------------------------------- > HDSA and their care caregivers survey - you got > your ears on??? Being new to this forum, does HDSA ever look here? Do they ever chime in? My experience with HDSA has been far less than favorable (No Offense intended Mr. and Mrs. Ireland) I read a story about someone on another forum that donated faithby caring4hd - Huntington's Disease Support Center
WOW Liz....I started reading through the My Story. What a great forum, all of the folks here reaching out, sharing and walking this road together. Makes me feel terrible at the underlying thoughts that I have ...... I respect each and every one of you so much!!!! In my case, her dad passed after 10 years (she has had it 11 - HD is not the same in all).....her dad had 4 siblings 3 of whby caring4hd - Huntington's Disease Support Center
Hi Lisa - Thanks so much! Even though you are in another country, the boundaries of how HD affects those of us looking in strips the geographical boundaries away. I can relate to what you are saying completely. My SO is still here, and alert and interactive, but everything else has slipped and the hardest thing is her realizing that the despite her own determination to be the master of heby caring4hd - Huntington's Disease Support Center
Thanks JFB. I know that sounds crazy but appreciate the reply. It helps. In for another long night. She does not want to sleep. Lord help me.by caring4hd - Huntington's Disease Support Center
Hi all - I have only been in the HD community for less than a year. I met a beautiful woman that had HD as part of the package. She is wonderful and sweet and sadly has HD. She is into her 11th year; I am her sole caregiver. I have had to learn a lot about HD and am absolutely terrified as I see it advancing in her seemingly so quickly. We have had 2 near fatal choking episodes, but noby caring4hd - Huntington's Disease Support Center