ValerieR... My name is Valerie Rife....I'm 45 years old...I was tested in 1997 negative.. my sister Vicky was two years older then me and passed away when she was 45 was positive with HD...My sister Debbie passed away a week ago was 46 years old also positive with HD...my mother passed away at the age of 58 also positive with HD...survivor's guilt is something I'm dealing with now...I live in Waby ValerieR - Huntington's Disease Support Center
Where do I begin...and please if I'm all over the place it's only because that's how my thinking process is right now..Huntington's is not new to me at all...I remember back when I was 7 years old I was told my grandmother had "Huntington's" and that's why she was in the nursing home...at the age of 12 I was told I had a 50/50 chance I could get Huntington's if my mom got it...when I waby ValerieR - Huntington's Disease Support Center