I'll probably be going on disability at work soon and was wondering what type of Medical insurance people that are on disability have. Has it worked out OK for you. I think I can do COBRA insurance but i think it's pretty expensive. Thanks for your thoughts.by schlinky1 - Huntington's Disease Support Center
I tried Abilify a few years ago and it did not seem to do much for my movements. I don't remember the dosage, but I do remeber it was expensive. $80.00 a month even with insurance. I now taking resperdol twice a day and that seems to be helping the movmenents I was having at night.by schlinky1 - Huntington's Disease Support Center
She means the best I'm sure. Just rather would not read scipture in this forum. Pal - I'm sorry to hear that the that the drug for movements did not work well. That is the type of information that is helpful to someone with HD. Hoping for a drug for movements that doen't have the side effects of the current drugs. Markby schlinky1 - Huntington's Disease Support Center
Barb - Very well said and I back you 100%. As you said everyone has a right to to their beliefs and PAL has a right to hers but I too don't think this is the proper forum for a prayer thread. I personally feel unconfertable reading this thread. We all share a common foe with our battle with HD regardless of what our beliefes are. Markby schlinky1 - Huntington's Disease Support Center
Atta-Boy Will Your'e the Good Stuff to the rest of us! Markby schlinky1 - Huntington's Disease Support Center
Hello Mike Thanks for responding I've been on here for a while watching and learning this website has been a great help to me. I'm 56 with a CAG count of 41. I was diagnosed 4 years ago and on lexapro and resperdal for movements. I find I'm having a hard time doing things such as basic housework just no drive to keep things up at home. My workplace has taken away much of what I was doingby schlinky1 - Huntington's Disease Support Center
Kelly, AS a PHD I watched my father go through the entire process of HD. Wathched him draw his last breath. Thanks so much for putting into words so well what we all have gone though battling HD. We too have found that it takes time to move on from the loss and get on with life. Look forward to your next writings! Markby schlinky1 - Huntington's Disease Support Center
I'm a PHD who is in earlier stages and am struggling with what I do for work everyday. Kind of in a award stage where I can do simpler things at work and still drive locally. I used to do field service work and my company has taken that work from me so I don't have to travel anymore which has helped a lot. My company also has LTD that pays 60%. I don't know if they require SSDI though. I wonderby schlinky1 - Huntington's Disease Support Center
Merry Christmas and Happy Holidays to Steve and Marsha and everyone else on this forum. I've gotten so much from this site in the last year very thankful!by schlinky1 - Huntington's Disease Support Center
Hey Mike, You descibed very well the stage I seem to be at. I still try to work and sometimes when trying to absorb new information it seems to pass straight thru my brain and out my ear. Very frustrated not being able to readaly do the stuff around the house I used to do with no problem. I also seem to have lost the desire to do all the different things that are part of keeping up a homby schlinky1 - Huntington's Disease Support Center
Hi Marsha, I don't post much but am on this site but on it on a daily basis. I've gotten so much from what you and Steve do to keep this site up and running. No problem to look at a little spam here and there. I'd be lost without you guy's. Can't begin to put a dollar amount on what you do to keep us in the loop on the latest and explain in a way I can understand. Hopefully we'll all see theby schlinky1 - Huntington's Disease Support Center
Hey Barb, Very good points you are making, right now anyway they haven't cut my pay or brought it up in my discscussions with my boss. They however are wanting me to try and learn new products to support so I have something to do and since my focus and memory are not so good that will be a real challenge. Right now I a'm able to live by myself and take care of a home athough doing the chorby schlinky1 - Huntington's Disease Support Center
I have HD and watched my father go thru the entire cycle till the end. Like Marsha was also their at the end holding his hands. His last few years were sorta rough he had chorea really bad as they couldn't seem to get his meds straight. When I saw him thrashing around in the Hospital bed I decided that was not really living with dignity and I didn't want to go through the later stages with myby schlinky1 - Huntington's Disease Support Center
Sonshine, I tested postive with a CAG count of 42 and am going thru a simliar thing as far as work goes. I used to work in the field service dept. for my company and after I told them I had HD they tried to simplify things for me too. They took away my travel. (don't miss all the flying) and visits to customer sites because I not longer could finger out problems the way I used to. I now workby schlinky1 - Huntington's Disease Support Center