It has been a long while since i have been on here but need the support now more than ever. My mother has Hungtingtons disease and my step father has been caring for her for the last few years as the disease has progressed. Back in Februrary my step dad passed away and i have not become her care giver. She is actually still living by herself which I never thought would happen but she is one stby vtgirl - Huntington's Disease Support Center
Is it true that you can take a blood test for Huntingtons and get the results back in as little as one day?by vtgirl - Huntington's Disease Support Center
Wow, my sister and u want to do our first half marathon this year. If this isn't inspiration enough, I don't know what is. Good for you Will!by vtgirl - Huntington's Disease Support Center
Thank you!by vtgirl - Huntington's Disease Support Center
Hi Will, I know you have shared it before but could you share the vitamins you take?by vtgirl - Huntington's Disease Support Center
Sorry for your loss Will. It is ironic that I am reading this blog now while at my mothers last visit with Dr. Rosas for the clinical trial for crest-e. Unfortunately the trial has ended early but the experience here was great with Dr. Rosas and the staff. Again, very sorry for your loss.by vtgirl - Huntington's Disease Support Center
Kathleen, I am so sorry to hear that, my heart reaches out to you. I was wondering about that, i already have life insurance so not sure how it works for sure. I dont think my mothers life insurance was impacted but certainly something i need to look at prior to getting tested. Thank you for your response and lots of good thoughts and prayers goingyour way.by vtgirl - Huntington's Disease Support Center
Thank you Mike, this is helpful. Most days I stay positive and then sometimes it just hits me like a ton of bricks. It makes me angry to see my mom like this and angry that it could be me some day or my daughter. My husband puts it into perspective for me as he lost his dad when he was 17, he reminds me how lucky I am to still have my mom in my life and he is right! Just trying to live every dayby vtgirl - Huntington's Disease Support Center
Wow Howard, that is inspiring. Thanks for sharing.by vtgirl - Huntington's Disease Support Center
Thank you so much for your response Patty, i do appreciate it.by vtgirl - Huntington's Disease Support Center
I don't post too often here but received more bad news tonight. My mother was part of a family of 4 children, 3 which have been positively diagnosed with the Huntington's gene. The 4th could have had it but was never diagnosed. Her youngest sister diagnosed today which now brings her two kids, two grand kids and two more on the way with the potential to have the gene. My step father thinks that Iby vtgirl - Huntington's Disease Support Center