Audrey, I can only speak from dealing with my husband. But I feel a person with HD may not have insight into their abilities or limitations. I wanted to support my husband if he wanted to do something new or challenging and at first I did support him. But then I got a realistic view of his lack of insight Shortly after he went on SSDI he wanted to take up archery again. At this time he wasby Debra - Huntington's Disease Support Center
Life is hard, HD makes life overwhelming. Different people cope in different ways. There is no right answer for everyone. People all make choices and decisions that change as their lives change. What may be right for a caregiver or someone with HD changes as the responsibilities and symptoms change. In speaking from my personal experience when my husband was first diagnosed with HD I confided witby Debra - Huntington's Disease Support Center
I was told prozac and paxil may cause drowsiness in some peopleby Debra - Huntington's Disease Support Center
Good topic about work and depression. My husband has had HD for 10 years. I have only told 2 close friends at work and my 2 supervisors. I work in the medical profession and you would think my co workers would be compassionate. Unfortunately I have seen my coworkers in action complain about a people who have medical problems and had to miss work. I find they have compassion for a short period ofby Debra - Huntington's Disease Support Center
my husband's doctors recommend prozac to be taken at night.by Debra - Huntington's Disease Support Center
Just had to respond to this. Judy I can totally relate. My husband has also spent all day on the toilet obessesing about urination and bowel movements. He does have an enlarged prostate so I'm sure that plays a role. It was impossible to get him off the toilet. He has had about 3 urine accidents didn't quite make it to the bathroom. It had gotten to the point where it was almost impossible to getby Debra - Huntington's Disease Support Center
Just had to respond to this. Judy I can totally relate. My husband has also spent all day on the toilet obessesing about urination and bowel movements. He does have an enlarged prostate so I'm sure that plays a role. It was impossible to get him off the toilet. He has had about 3 urine accidents didn't quite make it to the bathroom. It had gotten to the point where it was almost impossible to getby Debra - Huntington's Disease Support Center
I know about obsessing, you cannot reason with the person. my husband has obsessed with smells , the bathroom and the computer. a friend tried to play scrabble on line with my husband, my husband would sit all day staring at he computer waiting for him to play.It is impossible to reason with him. it is debilitating to him and me. what has helped my husband is Abilify. It works like a miracle atby Debra - Huntington's Disease Support Center
I know about obsessing, you cannot reason with the person. my husband has obsessed with smells , the bathroom and the computer. a friend tried to play scrabble on line with my husband, my husband would sit all day staring at he computer waiting for him to play.It is impossible to reason with him. it is debilitating to him and me. what has helped my husband is Abilify. It works like a miracle atby Debra - Huntington's Disease Support Center
my husband was taking Paxil, did well on it for quite awhile, then his doctor added Abilify because he was obsessing and I could not reason with him. What a difference in just 2 days. for me abilify is a wonder drug. just when I thought my husband was slipping away it brought him back.It stabilized him for about a year and then he started obsessing about having to have frequent urination or bowelby Debra - Huntington's Disease Support Center
An indwelling urinary catherer is not a good option as it can lead to urinary tract infections. regarding menses you might consider Depo-Provera injections that are given every 3 months. It is a form of birth control and eliminates or decreases menses.by Debra - Huntington's Disease Support Center
Fred, Sorry I didn't make myself clear. My husband has HD. I just meant my question as an observation that I noticied.by Debra - Huntington's Disease Support Center
My pHD would move his fingers and toes. In the beginning he could stop the movement for a while,but then the movements would reoccur. he wasn't even aware he was moving his fingers or toes. The inside of his shoes where both his big toes were would me be worn down with from him moving his big toes.by Debra - Huntington's Disease Support Center
My husband would move his fingers and toes. In the beginning he could stop the movement for a while,but then the movements would reoccur. he wasn't even aware he was moving his fingers or toe. The inside of his shoes where both his big toes were would me be worn down with from him moving his big toes.by Debra - Huntington's Disease Support Center
I've seen the posts on when does HD begin. I've known my husband since he was 16 years old.( 40 Years now) Looking back I wonder if this was a sign? when we would walk side by side on a straight path my husband would always start gradually veering to my side so I would eventually be pushed gradually off the past. This would happen when were still in high school. I would tease him that the worldby Debra - Huntington's Disease Support Center
My husband also had the dentist make a mouth guard. During the day I could hear him grinding his teeth. He was unaware of the teeth grinding. The dentist told him he had bone loss due to the clenching and teeth grinding. He also receives botox injection in his jaw muscle from the neurologist. The injections helped more than the mouth guard. He gets the botox injections every 3 months for the lastby Debra - Huntington's Disease Support Center
You're welcomeby Debra - Huntington's Disease Support Center
My husband signed up for the Horizon trial this week. We were told the phase 2 trial for HD looked promising. I like that fact that when the study is over in 6 months the drug becomes open label. My husband and I are very pro-clinical trials and he has participated in 3 trials. People need to participate in clinical trials to find a therapy or a cure for HD. At least I can say that my husband hasby Debra - Huntington's Disease Support Center
In novemeber my pHd husband and I went to our old college town. It was a 2 hour flight. we stayed 6 days and rented a house. it was just him and myself but staying in a house was very comfortable. It had 2 bathroooms which worked out well, it takes my husband a good amount of time to get ready. He can walk but not a very long distance and refuses to use a wheel chair. we went on short walks andby Debra - Huntington's Disease Support Center
I'm sorry to hear about your husband. My husband had reflux that made him cough and sound gurggle when he spoke. prilosec didn't work Protonix has helped.by Debra - Huntington's Disease Support Center
Please have a little empathy for JL. How frightened and lonely she must be without someone to live with her and care about what happens to her. Phd's lose insight into their behavior and actions. Without someone to help her how would she know if or when she needs help. Yes, JL can be irritating and annoying at times. We all can be iritating and annoyingat times. Give the woman a break. HD is difby Debra - Huntington's Disease Support Center
Eric, you are right I had a marriage that was good, not perfect, but one that brought happiness and the joy in sharing. Even with HD my husband and I have managed to maintain some happiness. It takes a lot of work from my side to make sure he gets enough, sleep, exercises, takes his medication, sees his doctors. Making sure I sit with him at all his doctors visits to make sure they hear my sideby Debra - Huntington's Disease Support Center
Marsha, Very well said.by Debra - Huntington's Disease Support Center
Eric, Everytime I read one of your post, I feel that you get it. You know how how I feel and what I have experienced. I met my husband when I was 15 years old, we grew up together, we had our ups and downs but life was good. We are still able to do things together go to the movies. Went on a vacation recently,but I had to make sure everything was very well thought out and not to strenouos.My husby Debra - Huntington's Disease Support Center
What got me thingking about asking my husband family for some involvement was that I see a counsler and she suggested that I ask for help. Her advice was that people just don't know what is needed and that I should ask for support so I will not get burned out. Well, I realy didn't think his family would help and the majority didn't disappoint me. Fred spoke of his wife's friend. Let me tell youby Debra - Huntington's Disease Support Center
So, regarding the email I sent last week, I got the response I expected. Along with my husband's brothers and sisters I sent it to his cousin. The only one to respond was his cousin she and on of my husband sisters will take him out to the movies. his cousin is very good on following through. No response from his unemployed brother who lives 10 miles away.by Debra - Huntington's Disease Support Center
Franj, I agree with you that you can't expect more from people than they are willing to give. I'm just tired of hearing people say to me , "why don't you ask for help, you won't know until you ask what people will do." So I asked. I don't expect much, but a least I won't ease their guilt by having them say later on, "if only you had asked for help" Do I sound angry and biby Debra - Huntington's Disease Support Center
Thanks everyone for your response. We saw my husbands family at Christmas. They know he has a G tube and they could see he has difficulty speaking. I usually stay close to my husband because he is difficult to understand . This time I let him spend the time with his siblings mostly by him self. I wanted to see how they did with him. They stayed a little time with him then went on to see others. Iby Debra - Huntington's Disease Support Center
Thanks everyone for your response. We saw my husbands family at Christmas. They know he has a G tube and they could see he has difficulty speaking. I usually stay close to my husband because he is difficult to understand . This time I let him spend the time with his siblings mostly by him self. I wanted to see how they did with him. They stayed a little time with him then went on to see others. Iby Debra - Huntington's Disease Support Center