smiling sara Wrote: ------------------------------------------------------- > > Are the COE's like regular doctors? Do they take > insurance? I would assume they're probably out of > most networks though? > > I'm in PREDICT nearby, but could also do COHORT > there. I use the COE in Tampa. They are SO wonderful!!! They really seemed to genuinely care about meby swgirl - Huntington's Disease Support Center
I'm sorry you are having a tough time with this. Insurance companies don't make anything easy...except for taking your money, of course I was denied life insurance about 10 years ago. I was going through my divorce at the time and asked the doctor to prescribe Zoloft for my anxiety. The life insurance company denied my application, stating that I was "suicidal" I was dumbfounded. So,by swgirl - Huntington's Disease Support Center
I don't think she would be able to get a pedicure with an active fungus. Most salons will politely refuse the service due to the potential risk to other clients. Good luck at the doctor!by swgirl - Huntington's Disease Support Center
What a coincidence! When my +HD Mom and I were at the HD Center this past Monday, she took off her socks and WHOA! Her toes are completely consumed by this fungus. This is just something that has developed over the past year. I also wondered if there was a connection with HD. In any case, she has gone to the foot doctor and they put her on a precscription anti-fungal for a while. It seemed to helby swgirl - Huntington's Disease Support Center
WOW. I agree with the others here. You have done a fantastic job of relaying your fears and concerns here to total strangers. Granted, we have an advantage over your parents-in-law: we understand where you are coming from. I would hope, for your daughter's sake and well being, that they would stand up and take notice of not only HD, but your daughter's future. I can't imagine the courage it's takby swgirl - Huntington's Disease Support Center
I'm so sorry for your loss I will keep you and your family in my prayers.by swgirl - Huntington's Disease Support Center
Welcome! Having just gone through the testing process, I can tell you it is one of the toughest decisions I have ever had to make. I had to wait a few weeks for my initial appointment. My results were back in a little under two weeks, but I could not get an appt. for my disclosure for an additional 3 weeks I was as nervous as a long tailed cat in a room full of rockers, but the time had come forby swgirl - Huntington's Disease Support Center
I'm glad you will know one way or the other. I hope the results alleviate some of the heavy burden of stress for you. Please post when you feel up to itby swgirl - Huntington's Disease Support Center
Wow, Liz. This is a really touchy subject for a lot of people, so I'll try to be gentle here. I work at a hospital with patients all day long, and many of them express their faith in God and his power to heal. But I have NEVER gone so far as to tell a patient that God is the only way to a cure. While this may be true IMHO, it's not my place to be God's messenger as to whether or not someone willby swgirl - Huntington's Disease Support Center
Trudi, I'm so sorry you are struggling. Venting is always good, and that's what we're here for--to help each other. When I first moved to Florida, I kept seeing trinkets on car antennas in the parking lots. You know, tennis balls and such. Since we have a lot of senior citizens down here, I realized it was so people could identify their cars easily when they came out of the stores. Cars nowadaysby swgirl - Huntington's Disease Support Center
I agree 100% with everything said here thus far. There's just no use in "symptom hunting". It will just drive you nuts. If you're at risk, testing is the only way to know for sure.by swgirl - Huntington's Disease Support Center
Marilee, I am praying for you and your family. I hope the you have your questions answered once you have your appt.by swgirl - Huntington's Disease Support Center
How sweet! Moments like those are rare for anyone on any given day. I'm glad you had such a great night!by swgirl - Huntington's Disease Support Center
OH MY GOSH!!!!! THIS IS SUCH GREAT NEWS!!! I am thrilled beyond belief for you, Stella! That's really encouraging news from your doctor, as well.by swgirl - Huntington's Disease Support Center
My thoughts and prayers are with you, as well, Stella. It takes so much courage to go through with the testing and I am proud of you for doing this. I'll look for your post when your readyby swgirl - Huntington's Disease Support Center
I'm so sorry for what you're going through, especially with a newborn to take care of. Hormonal fluctuations are an unfortunate fact before, during, and after pregnancy. She is more than likely, as others have stated, reeling from her test results. She may also be suffering from post-partum or some other type of depression. I think it was extremely responsible and courageous of her to get both heby swgirl - Huntington's Disease Support Center
Hi Trina! Enjoy your visit!by swgirl - Huntington's Disease Support Center
Eric Wrote: ------------------------------------------------------- > Welcome... the stress of testing.. and the stress > of wondering before you decide to test often looks > a lot like symptoms. If you symptom hunt.. you > have a 50-50 chance of being right.. SO true. Welcome and I wish you and your boyfriend all the best.by swgirl - Huntington's Disease Support Center
mrspatwolf Wrote: ------------------------------------------------------- > For toilets, not just grab bars, but taller > toilets are a great help also. If you look in > stores you'll see handicapped approved toilets > that are taller, and if you don't want to replace > the whole toilet then adaptive equipment sells > taller toilet seats to put onto the toilet. This >by swgirl - Huntington's Disease Support Center
Thanks for the update, Eric. I can't imagine the road your traveling, and I hope that I have as much Grace as you when my mother's time comes.by swgirl - Huntington's Disease Support Center
paulabhouck Wrote: ------------------------------------------------------- > Glad it went well. Kids usually know more than we > think they do. > > Paula So true! Glad it went well for youby swgirl - Huntington's Disease Support Center
Mira, welcome! I am so glad you shared your story. Have you looked into John's Hopkins? It's where my pHD grandmother's brain was sent for analysis after she died. The doctor's seemed to think it was strictly dementia. That was back in the 80's when I think they were just getting a grip on HD. The post-mortem autopsy confirmed that she had HD. I am fortunate enough to live within 3 hours of an Hby swgirl - Huntington's Disease Support Center
My pHD mother has complained of pain all over off and on. I think it's due more to arthritis than the HD, though.by swgirl - Huntington's Disease Support Center
Hope, I am currently on Zoloft, and have taken in the past, as well. When I took it last time, I made a HUGE mistake by trying to come off of it by myself. The horrible dizziness is what I remember the most. My doctor was soooooo mad at me. Check with your doctor before you any med changesby swgirl - Huntington's Disease Support Center
jsr Wrote: ------------------------------------------------------- > I found his obituary online. They had a photo, but > instead of one where he was smiling, happy and > healthy, they used one from his final days. I was > not pleased I'm so sorry for your loss, and the obit seems to be a kick in the teeth. Try not to read too much into the walking thing. Big hugs coming youby swgirl - Huntington's Disease Support Center
What great news! Congratulations on rekindling your relationship. All the best for a bright future!by swgirl - Huntington's Disease Support Center
Welcome, Michelle! Good advice here...MRSA is a nasty bug and, unfortunately, is prevalent in many nursing homes. Short of a massive dose of antibiotics, I'm not sure what can kick it out of the body. I wish you the best of luck in these trying times for you and your family.by swgirl - Huntington's Disease Support Center
stella Wrote: ------------------------------------------------------- > Anyhow, i dont know how you get through this, I > am so scared. I totally understand about being scared. I laid the groundwork for my support system (church, co-workers, friends, family) before I went through my testing. My boyfriend of nine years agreed to go with me when I had my blood drawn and my best friendby swgirl - Huntington's Disease Support Center
Stella, what kind of support system do you have? Try not to read too much into "symptoms". I was bumping into walls, had trouble speaking, dropping dishes, etc. That's why I needed to know. The not knowing was making me crazy.by swgirl - Huntington's Disease Support Center