krista- Considering all you have been through it sounds to me as if you have a very solid head on your shoulders. I know you may not consider it luck just yet, but from your mothers history I would consider you very lucky that she has continually returned in her rough patches and informed you that she has HD. I myself have spent a lot of time angry and filled with resentment after HD surfaced inby norab - Huntington's Disease Support Center
You are in an amazingly difficult situation here, and although your sister may never be able to recognize it, she is very lucky to have you so involved in her life. As to your question should you be concerned about your sister believing in her mind that you will be taking the children away. In short yes. However I do not think the concern is about the possibility of her running off with the kby norab - Huntington's Disease Support Center
I do not fully understand the answer in the original post. I know that wheat has in the past been linked to a number of different disorders specifically schizophrenia. Wheat is one of the more common food allergens but still only a small percentage of the population is actually allergic. However I have heard different numbers for population intolerance ranging from 15% to 30%. A large number of pby norab - Huntington's Disease Support Center
I have just recently started looking into supplements after reading a number of very positive threads here. I am a long standing vegetarian so when fish oil was high on the list I immediately turned to flax as an alternative DHA source. This morning while reading the Omega-3 page on the HD lighthouse page it says flax oil "should not be used as a source of DHA" however it didn't elaboraby norab - Huntington's Disease Support Center
I have never been in the chat room here, but from my brief time on this site I know that you all have invaluable information and insight into so many topics. I'm not big on siting around my computer waiting to chat, but if there was a schedule of topic themed chats in the webinar fashion, then I would calendar them in. Not because I have a lot to offer but because I still have a lot to learn... oby norab - Huntington's Disease Support Center
I have to say I fall into your boyfriends shoes on this one. A few years ago when I first found out my father had HD, I thought I wanted to get tested and the sooner the better. But here I am years latter still floating in the realm of at risk, and content in staying here for the time being. I have a lot of the same symptoms as your boyfriend but do not feel certain that I have the gene. I went wby norab - Huntington's Disease Support Center
or pull a "wag the dog" style snafu where an a list celebrity is diagnosed with hd and from time to time have public incidents splashed on the tabloids. It's so sick what it would take to really reach the general population.by norab - Huntington's Disease Support Center
Do not be afraid of your doctors "start the clock" comment. That clock can have a good lifetime on it, perhaps hard at times, but it can still be good. Your husband may be in denial now but that doesn't mean it will last forever. Continue to talk to him about it. He will eventually come around if he does not want to cause your children the pain his father caused him. I personally grby norab - Huntington's Disease Support Center
Nancy- Don't be so quick to second guess the psychiatrists suggestion. It is much better to make the decision to go in reverse on your own than to have it forced upon you. You will have a home where ever your family is. If you stick with your house and run through your resources things will be much harder than if you decide on your own to give up your home and lessen the financial stress on yoby norab - Huntington's Disease Support Center
In my opinion and imagining people in shoes similar to mine, I would say it is guilt that keeps people from being more involved. The people on this forum only represent a fraction of the hd community. In general you all as a group are informed, supportive, caring, and open. I come form a large extended family effected by hd, and could fairly certainly say no one in my blood line has ever been toby norab - Huntington's Disease Support Center
Nancy- Crying is fine, crying is good, and believe it or not in time you will cry less. HD is a powerful disease that will affect your entire family so it is good that you are being open about it and your emotions now. Find the friends that will let you cry and hold onto them with dear life because when you stop crying they will probably also be the best at listening to you talk. Do not gby norab - Huntington's Disease Support Center
my fathers physical symptoms only started showing up after he had a head trauma accident, but looking back on his life now there were emotional and psychological symptoms long before that. but once again the head injury was definitely the downfall.by norab - Huntington's Disease Support Center
thank you sara and pat. The assisted living place is a woman's personal business and not official as there were never any contracts signed. She is holding firm in the fact that my father is going to be evicted at the end of the month. And I must admit considering the regard in which he treats people I do not blame her. I do have power of attorney(much to my fathers chagrin) but have been toldby norab - Huntington's Disease Support Center
slightly off topic, but reading this thread is the first i have thought about supplements. I am still in my mid twenties and not ready to get tested but i have been a vegetarian for the last 15 years so my creatine intake is from my understanding- none. Have there been any studies on HD progression in vegetarians?by norab - Huntington's Disease Support Center
New and looking for insight into living situations and general coping. My father who is 62 has HD. He was diagnosed two years ago even though he was symptomatic for years prior to that. He has extensive paranoia and delusion issues... which have burned most all of his bridges. I myself had all but stopped speaking with him prior to his diagnosis and am just holding on to threads now. A family friby norab - Huntington's Disease Support Center
My name is nora. I am 25 and at risk with one at risk sibling, neither of us have been tested or has children of our own. My father 62- was diagnosed with HD two years ago even though he has been symptomatic for nearly ten years. The history of HD was kept secret within and among my extended family. I am continually in shock at the extent and variety of damage HD can cause. I am grateful to findby norab - Huntington's Disease Support Center