As someone who have just rediscovered coffee after a long break from it, I am now very pro-coffee. So I support coffee-dating! I'm also very pro choosing the kind guys over the other kind.by redwife - Huntington's Disease Support Center
Remember: Being a good wife is taking care of his child. There is no guilt or shame or betrayal in that.by redwife - Huntington's Disease Support Center
I was thinking of doing it today. But I'm afraid that will put Christmas in a weird light, so maybe I should wait till after Christmas? Even if I don't want to? I mean, I don't want them reeling at Christmas. Driving myself kinda silly here... (BTW, Christmas eve is the big day here - huge traditional dinner, walking around the tree singing carols, and finally the opening of presents)by redwife - Huntington's Disease Support Center
I've decided to tell my family. I just can't sit through Christmas (we're spending it at their house) and pretend like there's nothing going on in our lives, can't risk crying or screaming at them if they start hinting at grandchildren again. The other day my mother had one of her neurotic fits and called me being all crazy and trying to blame me for nonsense, and since I'm pretty much exhaustby redwife - Huntington's Disease Support Center
It's so funny to read about the supplements in here, I'm Norwegian and we're pretty much brought up on cod liver oil We don't get much sun, especially in the winter months, so we can get low on Vitamin D. Health authorities therefore recommend taking the cod liver oil. I'm making my husband do it too. I read some of your story in other threads - been reading like crazy since I found the forumby redwife - Huntington's Disease Support Center
Thank you. We don't have any children yet - hope we will some day in the not too distant future, though. Did you tell them about your husband being at risk, or was he already tested/diagnosed?by redwife - Huntington's Disease Support Center
This I'm struggling with - I haven't told any of my family about my husband being at risk. I've never told them my MIL's real cause of death, she had a very serious and debilitating accident before HD kicked in and was in a nursing home already, so it's a good cover story. Thing is, I'm scared to tell my parents. They're loving and generous and smart, but they're not perfect. And I can't stand thby redwife - Huntington's Disease Support Center
Haha Will, that's sweetby redwife - Huntington's Disease Support Center
Here's what I think: Your at risk parent chose to have you. That means choosing to have someone who might reveal the disease before they themselves showed any signs of it, whether through testing or simply by developing the disease earlier. It is your personal right to get tested. It is not a betrayal, and you can not be blamed if you chose to do so. Your parents' emotions are not your responsibiby redwife - Huntington's Disease Support Center
noreaster: Good tip.Thank you. I will ask if that's possible when we have our consultation ("genetic guidance", as they call it, first step of the testing process but useful whether you want testing or not) in January. We've had an earlier consultation, but weren't ready to continue the testing process and decided to start from scratch now. The doctor we first met knew NOTHING, I hadby redwife - Huntington's Disease Support Center
My situation is a lot like yours... Has there been any development since your last post?by redwife - Huntington's Disease Support Center
I live in Norway. Testing, CVS and PGD is free, but exclusion PGD has only been given once to one couple a few years ago, and will probably not be granted again. If we were both younger, I would fight that decision, but as it is I don't feel I can wait the time it takes to battle authorities before I start trying to get pregnant. And since my husband is 38, it would be good to know more about ourby redwife - Huntington's Disease Support Center
I'll add that I knew my husband was at risk when we got together, and I've married him for better or worse. I'm happy and strong and do well in a crisis, but still: Sometimes the thought of HD terrifies me so much I can hardly move. So I'm here to try to deal with it all.by redwife - Huntington's Disease Support Center
Hi, I'm redwife. Norwegian, public servant, age 31. My husband is 38, and his mother died from HD in her fifties. We're considering testing.by redwife - Huntington's Disease Support Center
Hi everyone, I'm new - registered 5 minutes ago. Thing is, I'm from a tiny little country with only about 250 people diagnosed with HD, and the available discussion board gets one post every two years. Pointless. My husband is at risk for HD. He's 38, and has no symptoms. We want children. We're considering testing. I feel so incredibly alone in this sometimes, and I desperately need sby redwife - Huntington's Disease Support Center
I'd never heard about the head trauma/HD onset link until today, but I imagine doing a controlled study of the phenomenon would be impossible. I've read a lot of stories about it today, though. And here's another: My late mother in law died of HD. She was well (but with psychological issues that might have been HD-related) until she fell down a staircase and suffered severe head trauma in her latby redwife - Huntington's Disease Support Center