Sorry for your loss. His journey is over, he reached his summit. I'm sure he is at peace.by lucy48 - Huntington's Disease Support Center
Theresa, Sounds like we are in a similar boat yet different. Two weeks ago I we went to bed & all was fine. The next day he was raging at me & hasn't stopped. He has filed for divorce, accused me of having a gun & threatening him, threatening to burn his house down & take everything away. Luckily we have no children. Mine from a previous marriage are adults with familiesby lucy48 - Huntington's Disease Support Center
As the caregiver of a PHD here is my take. If he plans on NO kids & makes sure he follows through (My husband had a vasectomy in his early 20 due to HD history) then no need to test. I'm not suggesting a vasectomy, just being careful. Go on, live life well. Symptoms may not show up for a long time. In my husbands case early 60's. I believe he lead a pretty full life & enjoyed it. We'by lucy48 - Huntington's Disease Support Center
I'm going to stick my neck out a bit. I don't participate on this forum much for many of the reasons previously stated. However I think this is a great place & don't know what I'd do without the information I have gleaned here. One of my big concerns is not offending people. I know this forum is open to all relating to HD. Because I am a caregiver there are times I go on & go off aboby lucy48 - Huntington's Disease Support Center
What about adoption? A friend of mine adopted a baby. The mom was the babysitter of some people who knew my friend. She didn't know the mother, the mother didn't want to know her, it was through a lawyer simple, not too expensive and all are happy. I don't know if I would try this without a reliable source but you and your circle can always keep your ears up & open. This was years ago evby lucy48 - Huntington's Disease Support Center
I want to say welcome also Pat. I don't talk here much but I read everyday & don't know what I'd do without these wise people. Seems like there is always someone who has good thoughts & suggestions. I have learned & try to remember every HD situation is different & we all must travel that road as best we can with our PHD but there is always someone here to advise or assist if tby lucy48 - Huntington's Disease Support Center
So sorry to hear about your husband. Hope he gets better soon. The trip idea sounds great and maybe it would rejuvenate your batteries. And visiting family is always nice. I just visited my adult daughter & her adult kids in Idaho for a week. It was nice. I will be a great grandmother of a boy any day now. So excited...by lucy48 - Huntington's Disease Support Center
Marsha, Rest, relax sit in the sun. Absorb all the vitamin D you can... Let others care for you a while, you deserve the rest.by lucy48 - Huntington's Disease Support Center
Kevin, I truly didn't mean to offend. This has been a sad& bad day for me. My husband who is not fighting got his results today & wouldn't let me go with him. He is not fighting, HE is blaming his father for leaving when he was young & me for just about everything else. I have done nothing but be in his corner. I guess I was expressing to you the things I wish I could expresby lucy48 - Huntington's Disease Support Center
Dusty you made me smile!! You sound like me (Buck-up as my grandmother would say) My generation grew up with a lot of disipline (in my sixties) we were punished for everything & it was usually physical. I think the people of today need to find a place between where they are & where we were. They blame everything wrong with them on everyone & everything from their past or situatioby lucy48 - Huntington's Disease Support Center
I'm sure you have heard the old saying you catch more bees with honey. I really believe it is true. Approach the people at work as nice unaware people. Talk with them what happened? I'm sure if this is a big company there have been issues in thepast with your husband & he has been told. Remember you live thousands of miles away & possibly he's not going to tell you he was brought onby lucy48 - Huntington's Disease Support Center
I wish I had some advise for you but I don't. My heart breaks for you & your daughters. I'm sure something can be done but you may need to go to the state where your husband lives for a few days to work on things. Hopefully he will welcome your help If not I don't know. Do you have medical records? My husband is in denial & won't let me go to Dr appts so I'm in the dark a lot. It iby lucy48 - Huntington's Disease Support Center
Why can't you hear the Easter Bunny making Love? Cotton Balls!!!by lucy48 - Huntington's Disease Support Center
Happy Birthday to one of the WISEST people I know!!! Do something special for yourself!!!by lucy48 - Huntington's Disease Support Center
Dave, So sorry for your loss I'm sure you are remember the good & loving times. May you have peaceful moments, new strength & hope for tomorrow.by lucy48 - Huntington's Disease Support Center
I too am sorry for your loss I'm sure she is at peace.by lucy48 - Huntington's Disease Support Center
sorry for your loss. Your family will be in my thoughts.by lucy48 - Huntington's Disease Support Center
maybe get a few acrylic paints, a brush or 2 and some paper do a bit of painting. Bet you could do as well as picasso or whistlers mother or many others. It could be fun and only cost a few dollars. You can pain on wood,cardboard, paper, lots of things.by lucy48 - Huntington's Disease Support Center
Being the caregiver I can think of two reasons to test. And a whole bunch not to. 1. Are you young and want to have children? If yes then PLEASE test. Children shouldn't have to worry their entire life about this disease do they have it do they not. And you can have children and guarantee they are 100% HD free. If you are positive. 2. It helps explain the crazy things going on in the PHD'sby lucy48 - Huntington's Disease Support Center
Your poem is so wonderful, I'm sure your Mom is proud of you. You are the kind of child everyone desires. You are in my thoughts.by lucy48 - Huntington's Disease Support Center
I used to try to calmly deal with the situation & he was not interested in having me acknowledge his frustrations or even for me to empathize with a situation (ie: I'm sorry you are having a bad day. I Love & support you) The anger still stayed & many times escalated me removing my self from the situation til he can defuse himself is the only thing that works. His therapist supportsby lucy48 - Huntington's Disease Support Center
Yay!!!! Babies & puppies are 2 of my favorite things... I look forward to updates every once in a while We all need something to smile about...by lucy48 - Huntington's Disease Support Center
My husband rages also. I've discovered I can usually tell if it is going to be a bad day. No sleep the night before or extra stress. He doesn't talk to me and starts slammed doors etc. When that occurs I will leave the house and be gone all day. Which can be hard if this starts in the morning. I have no family where we live & I don't want to involve friends so I go to my office and readby lucy48 - Huntington's Disease Support Center
So sorry for your loss. Loosing a Mom is hard no matter how old you are or the circumstances. Caring thoughts and Hugs to you.by lucy48 - Huntington's Disease Support Center
So very sorry to hear about your loss. You two made such a good team & your posts would put a smile on my face. I'm sure he is still with you guiding & inspiring you.by lucy48 - Huntington's Disease Support Center
I hope you are still reading this Elles, I generally don't chime in, I read and listen in a sense. I was surprised that you feel the forum is negative, this thread, maybe, in a truthful way but not the forum. What it is, is truthful. The people on this forum are dealing with HD either as a caregiver or as a person facing HD. I started here a little over a year ago when I discovered my husbby lucy48 - Huntington's Disease Support Center
I don't respond to the forum often, I'm still trying to wrap my head around the HD thing. But I want to thank Eric & Pat for their insight into children. I LOVE this forum I read it every day & it keeps me grounded and helps me know I'm not alone. When I feel defeated & have questions someone else is dealing with my issues and has a way for me to deal. The questions of kids (youngby lucy48 - Huntington's Disease Support Center
Happy Birthday Eric Soon you will be joining some of us who get younger each year. When you are older than dirt you will understand the concept. I try to think like a fine wine we just get better with age.by lucy48 - Huntington's Disease Support Center
for people with dry mouth due to medical issues there is a line of products called Biotene that is designed especially for that. It doesn't create more saliva but it helps with issues. The entire line is available at Walgreens. You might try researching on line also. Mfg GlaxoSmithKline.by lucy48 - Huntington's Disease Support Center
NO seriously no matter who you are if you get the chance soar with the eagles!!!!!by lucy48 - Huntington's Disease Support Center