Hi Bluegrass, As someone who has HD I thought I would tell you what I chose. I had my babies before I realized the magnitude of HD and how it affected my family. I will tell you that one of the number one reasons I wanted to test was so I could educate my children in the way I was not about the disease. I am struggling when the right time to tell them is, But I know it will before they have cby sunflower3 - Huntington's Disease Support Center
I decided to get tested for many reasons. More than anything I was one of those people that couldn't live with the "what if". Not knwoing for sure drove me nuts and consumed my life. I needed to know. I was pretty sure I knew the answer anyway. I resembled my mother and grandmother a lot. I also wanted to know so I could educate my children in the way I was not. I want them to beby sunflower3 - Huntington's Disease Support Center
Thank you Carla. Do you have children?by sunflower3 - Huntington's Disease Support Center
Im sorry you are having a hard time. I know how diificult it can be watching as I watched my grandmother. Stay strong and know that you are not alone!by sunflower3 - Huntington's Disease Support Center
I was mainly asking, because I would like to know if anyone is involved with anything to do with HD. I would really like to get involved! Kallieby sunflower3 - Huntington's Disease Support Center
Thank you everyone. Matt your info was helpful and I will be utilizing that website. I don't think that I explained the suffering that I watched my grandmother go through for her entire life. This is what I am scared of for me, for my children, even if they are negative, just for them to have to see me go through this. My grandmother died at 73, but she was gone long before that. She spentby sunflower3 - Huntington's Disease Support Center
So sorry for your loss.by sunflower3 - Huntington's Disease Support Center
I really love that I found this site. I have learned so much and all of you are so strong. Thank youby sunflower3 - Huntington's Disease Support Center
Hi I am Kallie I am 33 and I have three beautiful boys who are at risk. I worry about it everyday. I have been married to my husband for 14 years. I got my positive results of 42 repeats when I was 25. My grandmother had it and so do two of her siblings and she has cousins that are positive. My mother and aunt tested positive 10 years or so ago. They have a brother that refuses to get testeby sunflower3 - Huntington's Disease Support Center
Hi everyone, I am not really sure where to begin. I am a 33 year mother of 3 beautiful little boys. My oldest is 13 and I have twins who are 9. They are my entire life. Everyday I wonder if I passed this horrible disease onto them. I was tested and positive at 42 CAG's when I was 25. My grandmother whom I was very close to had it and my mom and her sister are both positive. There is a brotby sunflower3 - Huntington's Disease Support Center