Jetliner, Your web site is great> I wish you all the best with your cd.by beachbum - Huntington's Disease Support Center
Hi Barb, No have not had no time. Sounds lame I know but things seem to be moving so very fast, even the summer. Once Trish is gone I will have alot more time to catch up, maybe even take some time to talk with a few Dr.s soon. I have thrown up in the air for 43 years on to test or not to test. I truly do like coming to this forum and listening to all and everybodies input. I have learnt alotby beachbum - Huntington's Disease Support Center
Hi Barb I would have love to join you in the chat room but our hours are so different. I enjoy when we bump into one another on the forum.by beachbum - Huntington's Disease Support Center
Your story is very inspiring. I surely hope you take the positive and run with it even when it gets hard. I believe that is the only way you can fight this is if you put up the fight of your life. Thank you for the story.by beachbum - Huntington's Disease Support Center
I have to add that I also love the advise that everybody on here has to give because you can take it or leave it.by beachbum - Huntington's Disease Support Center
Barb that would be a fantastic idea to have an advisor come on this site to answer questions never know maybe could happen some day.We already have some professional care givers here. I just dont think we could ever put a $ amount to this question how can we ever measure what someone's life is worth. I know we are really talking about insurance and what not. I just thought I would reply what I waby beachbum - Huntington's Disease Support Center
Hello and Welcome I have so much gratitude for caregivers of HD and the professional care that we do have. So thank you for helping. Also that is great that you beat the odds. You don't have to live with that what if anymore. I do believe there has to be more training. More awareness and education.by beachbum - Huntington's Disease Support Center
Barb so sorry I missed your Birthday anyway I hope you had a wonderful happy day!!! You absolutly deserve the best. I have not been on for awhile. I have not been to enjoyable to be around my daughter is leaving for the service on Sept 9th so I have been trying to spend as much time with her as possible. I have missed talking to every body though. I hope you get this I'm sending wishes I hope thby beachbum - Huntington's Disease Support Center
Deborah, Well you already have done more than I have. I think you have to be ready for all the right reasons. Myself I could never get the nerve to do so. As far as counceling I got a bad taste of it and never went back, when I left there I new she did not like our gov. loved horses never wanted kids and so on. I left and could not bring myself to go again. Believe me it has haunted me for the 4by beachbum - Huntington's Disease Support Center
Someone had ask a question on a thread that has been closed and I would like to know if anybody has an answer. You know my brother had just passed in May but while he was here we could not find him a home that would provide the proper care for a HD patient. He had so much phycosis going on and was never really properly medicated. When he was no longer to fight anymore and he was medicated and isby beachbum - Huntington's Disease Support Center
Tim, thanks for sharing the artical. I never have time to be on line long enough to look for things and when I run across them like this. thanks agian and I hope you have a good 4th also.by beachbum - Huntington's Disease Support Center
Wow I would like to comment on this. First of all if you do not look your age that is great I could only wish and hope that when I turn 50 I do not look it. Anyway at 43 I am always looking for a bargin, sale, promo's or whatever they might be in these times you have to. Things are so exspesive. Nobody I think is low life looking for a deal. Think young live young save money anyway you can.by beachbum - Huntington's Disease Support Center
Here is to ya. I have to tell ya it does not seen all to unfamilure. Loved the blog though thanks for sharing it makes me feel like I really am not losing my mind. I will tell ya my heart in pouring out right now for you and your family. You will be in my prayers and thoughts for long time. I do know what you mean when little things do not mean nothing to others like they always say you do notby beachbum - Huntington's Disease Support Center
Barb I told you before I love you sense of humor that was really cute I have one for you. There was this married couple she was a home body and he worked hard out side the home so he came home and took a shower and she had everything from his clothes ready to his dinner. He came down stairs and said honey you do not have to put powder in my undies I can do it she said honey that is not powder itby beachbum - Huntington's Disease Support Center
Hey Brian, Welcome you could not have come to a better place there are a lot of good people here with a lot of good info or just comfort what ever you are looking for.by beachbum - Huntington's Disease Support Center
That is great, Im looking forward for more info.by beachbum - Huntington's Disease Support Center
Hi Tricia, Is your husband on any kind of meds that might help with his chorea. Welcome by the way I hope you and your husband might find a fix to help him become comfortable.by beachbum - Huntington's Disease Support Center
Phillip, Hello so sorry to here that your wife is falling fast. I hope that she will agree to go to the dr's as I seen with my family meds really do help, yeah maybe it does not solve everything but it may help with moods, eating and many more. I wish you the best it's sounds like you love her and willing to be by her side for the long term, I hope that you all can work together with this. Good lby beachbum - Huntington's Disease Support Center
Patricia, That is so terrific now your son and his wife can go on with their lives. I am so happy to hear the news. Praise God, and stay in prayer.: That is definately worth being on . I hope you keep wishing and praying on the next shooting star that comes your way. Bonnieby beachbum - Huntington's Disease Support Center
Happy Birthday J.. Deb how wonderful to hear that somebodies family is not totally defeated by HD. I'm sure you have been through enough though. I really hope that you have many more good years to build so many more terrific memories. It truely is so good to hear people like you have some good qaulity life left. Keep doing what your doing and looking up and forward for tomarrow. Bonnieby beachbum - Huntington's Disease Support Center
I dont know how I missed this post a couple weeks ago. I clicked on and read about your trip with your Granddaughter and her remarks were just beautiful. I'm glad somebody brings it to our attention once in awhile just how wonderful the small things are even if it was just a car ride it sounds like one you will never forget. By the way your grandbaby is so cute. Must take after grandma.LOLby beachbum - Huntington's Disease Support Center
So sorry to here the passing of Mary Louise Franz. It sounds to me she put alot of time and effort to HD. I opened the paper today and there was a 43 year old lady that passed away in the county nh of HD this week it is so sad to here that this monster had struck another family. I'm sure you will miss her deeply my thoughts and prayers are with you.by beachbum - Huntington's Disease Support Center
It sounds as though you had a wonderful time, your husband also. Just sorry his legs were bothering him it probably did not help the fact that he did not get a good night sleep. All and All it sounded like you needed that little get away and to see your parents and to get to meet other people outside of this forum. And people that you have been wanting to meet. Hats off to ya!!!by beachbum - Huntington's Disease Support Center
Denise I'm so sorry to hear your reports. I hope you are leaning on your family and friends. Dont stray to far from the forum you have lots of support and good info here. Stay true to yourself. Lots of prayers and hugs coming your way.by beachbum - Huntington's Disease Support Center
Love the pic. Going to read about your trip. Take care and Thanksby beachbum - Huntington's Disease Support Center
Barb love your sense of humor and your laughter even though I cant really hear it. You know its all in fun to break up all the sadness. I bet you thought hubby looked like Ken many years ago when you fell in love. How was your day trip. I was thinking about you.by beachbum - Huntington's Disease Support Center
That is soo terrific Barb. You are becoming the new Barbie, she has everything including fame and now you are right up there with her.LOL I want your autogragh also. continue to have fun with all your creations. Bonnieby beachbum - Huntington's Disease Support Center
Hey Denise, I hope you are trying to keep a clear head I know it must be very difficult though. Please know that you are and are going to be in my thoughts and prayers on Tue. Best of luck to you and may the outcome be a good one.by beachbum - Huntington's Disease Support Center
I always wanted to be just like Barbie, that girl has EVERYTHING!!!! LOL Just kidding if you know what I mean. To be serious now I have told you before Barb I think it is great that you still take the time to make things, beautiful things.by beachbum - Huntington's Disease Support Center
Kaelee you have come to the right place. I,m so sorry to hear of your life long struggle I can not speak for anyone else but I feel you pain, I just lost my brother a month ago. I know this is so ugly to deal with keep faith and I hope to here from you agian. I'm also pretty new Ive been here for about two months and love to read the forum I have learnt alot. Even a piece of mind.by beachbum - Huntington's Disease Support Center