Congratulations! I haven't been here in a long while but I wanted to share with you that I also went trough IVF/PGD (My husband's HD+) in 2010. As a result of a single embryo transfer, I got pregnant with my first child, a girl. Last summer, we went to look for the other embryo we had left after our 2010 fresh cycle, we transferred it and, guess what... I'm pregnant again! We chose not to tesby Luz - Huntington's Disease Support Center
I'm a little late, but happy anniversary, Barb and Dan! Those of us lucky enough to have been able to experience true love should always celebrate it! After all, we've worked hard for it. I'm also extremelly glad you've decided to quit smoking! Keep going, Barb!by Luz - Huntington's Disease Support Center
Thank you everybody!!! She does have a name... I'm just a little bit aprehensive about publishing it on a public site. We're enjoying her a lot! She's still very calmed. We're somehow expecting her to change because nobody can believe what a serene baby she is, but I guess we should believe it and enjoy it!by Luz - Huntington's Disease Support Center
Hello everybody! I just wanted to let you know that we welcomed our baby girl last week. She arrived a little late, but it was worth the wait: she's the most adorable thing (well, I'm the mum, lol)... really: she lets us sleep, hardly ever cries and never stresses out about anything. In fact, she's so calmed and mellow that the local nurse that visits you after you leave the hospital, made usby Luz - Huntington's Disease Support Center
Hello Piusvir! I'm writing this as I'm about to give birth anyday now to our PGD baby girl. My husband tested positive last year and after that we decided to go on with IVF/PGD. I don't know what it will be like for my daughter to grow up with and HD affected parent (in my husband's case, he was an adult already when his mom started to show symptoms, so I have no idea how he would have turnedby Luz - Huntington's Disease Support Center
LOL, Barb! I guess hormones are always driving women's lives, haha. You're always so sweet!!! I'm glad to see you too. I've missed the HD community... it's strange because I feel like with this pregnancy I'm in a bubble where I feel comfortable and warm and I can forget about HD for a while (not that I really do), so I took some time off... but in a way or another, the people here are always onby Luz - Huntington's Disease Support Center
Wow, I've been away for a while, so I hadn't read this post. Nice original post to read for someone who is now 8 months pregnant with a PGD girl! I honestly hadn't thought about how that would make me a sinner in some people's eyes... All I have to say is, no matter how harsh those people judge my husband and I, I couldn't care less about what they think. I will take responsability for my decby Luz - Huntington's Disease Support Center
I had the same experience both Stacy and Sally had (BTW, at the same clinic as Sally). It was made clear to us that they would only transfer embryos that had inherited the non affected allele that my husband got from his non HD affected side of the family. In our case, it was a little bit more complicated because, as my husband has no family in Canada, they had to get creative and develop a speciby Luz - Huntington's Disease Support Center
I'm so so sorry for your loss, Dave. You are in my thoughts, Luz.by Luz - Huntington's Disease Support Center
Hello Marsha! I'll also try to catch up with the translations! Love the new site!by Luz - Huntington's Disease Support Center
Dear Eric, I'm so sorry for your loss... you and your sons are in my thoughts. Luz.by Luz - Huntington's Disease Support Center
Thank you everybody! My nauseas have been a little bit out of control lately so I ended up in hospital (couldn't even sleep!). But I'm doing much better already and the baby is doing great. I'm glad I get to share my good news with such a wonderful group of people!by Luz - Huntington's Disease Support Center
Sally: yes! I'm so tired of the needles... but I found out that applying heat after the shot helps you with that. That's been working miracles for me, but it's still hard and I can't wait to be done with the shots. BTW, congratulations on the twins! Must be a lot of work!by Luz - Huntington's Disease Support Center
Jojo, My husband tested positive on january, but by that time we had already decided to go through IVF/PGD if he was positive. To me, having children at risk was never an option... I just knew I wouldn't be able to respond if my children one day asked me why, having other options available, I decided to have at risk children anyway. Testing on the womb is a good option if you feel ready toby Luz - Huntington's Disease Support Center
Thank you, everybody! Sara: thank you for thinking about me. That's why I thought it would be a nice idea to share it since I had already talked about how I had already started the treatement. Paula: apparently, there isn't a big difference in success rates when you tranfer one or two day 5 embryos. So, single embryo transfer (SET) is becoming standard in many countries. If it's a high quaby Luz - Huntington's Disease Support Center
That's great, Barb! I'm very happy for you!by Luz - Huntington's Disease Support Center
I'm happy to report that IVF/PGD worked for us and I'm now pregnant with our first child. We got our pregnancy test results a couple of weeks ago and an ultrasound showed us yesterday that it's a viable pregnancy. So, it's still very early and the prudent thing would have been to keep it a secret for a little while, but I'm having a hard time not telling everybody! I still wake up every daby Luz - Huntington's Disease Support Center
Welcome JoJo! In our case, it was my husband who tested positive this year, also with a CAG 42. We also thought about the best choice for us to have children, and we decided to give IVF/PGD a try. Now I'm happy to report (even though it's a little soon) that I'm pregnant after our first try. IFV/PGD is very tough. It's tough on your body, it can be very expensive but most of all, you riskby Luz - Huntington's Disease Support Center
I'm so sorry, Marsha... you and your family are in my thoughs. Luz.by Luz - Huntington's Disease Support Center
Happy thanksgiving, American friends!!!by Luz - Huntington's Disease Support Center
I'm really sorry, Lorraine... take your time now. We're here for you. Luz.by Luz - Huntington's Disease Support Center
Hi Barb! We've missed you! I love how you always manage to keep a positive attitude. I wish you the very best on this new chapter in your life. Remember that as much as things are already changing, one thing will remain: all our support and love. Luz.by Luz - Huntington's Disease Support Center
Hi Khammer! Even though it is my husband who is HD+, I identify with many of the things you're going through. When I found out my MIL had HD, I also found out my husband's status because she has two copies of the gene. At that time (just last year), I felt completly isolated... his family was pretty much in denial, my husband hated talking about it (there has been some hugh progress since thenby Luz - Huntington's Disease Support Center
Amazing news! Eric, I don't think they can shut down the whole production of huntingtin. The protein, even thought we don't know a lot about what role it plays, is nevertheless very necessary. Somewhere I read they were trying to determine what percentage of the huntingtin protein could be shut down and that it is probable that as much as an 80% reduction would be well tolerated.by Luz - Huntington's Disease Support Center
Congrats, Will! What an amazing role model you are to us all!by Luz - Huntington's Disease Support Center
Welcome Kaseraki! My husband is 33 and recently tested positive (CAG 42). I'm trying to be a great support to him, just like your husband is trying to be one for you. We're going through IVF/PGD right now, so let me know if there's anything you want to know about it. I'm glad you found us! This is a great support group. Luz.by Luz - Huntington's Disease Support Center
My HD+ husband and I are participating on the COHORT study since it's the one that's being offered closer to us... like really close (a few blocks away). It does feel great to be able to do something... and what I love the most is that we get to participate together, and an HD- person like me can do something. And guess what? My husband did a lot better than me on those tests, lol... thaby Luz - Huntington's Disease Support Center
I think the best doctors are those who are sensitive enough to really care about their patients. They're not affraid of getting involved. My mother in law lives in a small city in southamerica where no doctor has ever heard about HD. But her doctor has always been caring enough to do his research. Even though my MIL has never had chorea, he was able to diagnose her anyway and has done a greatby Luz - Huntington's Disease Support Center
I'm really sorry to hear this, Eric... you're very brave person and a role model to every caregiver or future caregiver. Teresa, you and your boys will be in my thoughts during this difficult transition. Luz.by Luz - Huntington's Disease Support Center