Hello, I am so sorry you are going through this. When my brothers and I found out we might have the gene as well, we had similar thoughts; that we would rather end it all than live with the disease. However, I just feel that I can't think that way now because of my husband and son. The diagnosis is a terrible thing for one's loved ones. But, I can't imagine cutting out the time that we do haveby KGM - Huntington's Disease Support Center
Hello, Casey--sorry about your result. I got mine a few months ago, CAG 44. I'm not sure what my mother's was (she never had the test) but she died at age 44.I am 33. I started having a finger twitching at around 26. I went through a lot of schooling--professional school, training afterwards, many tests, etc. and did fine. So far, I have not had trouble performing my job. When I think abouby KGM - Huntington's Disease Support Center
I agree, I found the social worker in Wauwatosa, Jean Morack, very helpful when I was thinking about whether to test, etc. The number is 877-330-2699. You just leave your info and a good time to call...by KGM - Huntington's Disease Support Center
My brothers and I were always scared about getting in the car when my mother was driving. She even had a few accidents. She never drove when my father was around, so I don't think he knew how bad she was getting (he always drove if they were together). I was glad when our car died, because then she wasn't able to drive any more. I agree with the suggestion that someone should go in the car wiby KGM - Huntington's Disease Support Center
Kaelee: I am so sorry about your mother. I understand how you feel...My mother died at 44 and even though my first reaction was sadness, I then started to feel that she was finally at peace--her movements were finally stilled, her battle with HD was over. I was lucky enough to see her the month before she died (we lived very far apart). I always be grateful for that...Hang in there...by KGM - Huntington's Disease Support Center
I am in the health care field, and I definitely believe there is a lot wrong with it. Doctors are pressured to see as many patients in as little time as possible and try to generate as much money as possible... The problem of access is critical; how are we supposed to provide care for the uninsured and underinsured? I am just appalled at how many people do not have coverage. Then, Medicaby KGM - Huntington's Disease Support Center
Our social worker didn't know until we got there for the follow-up appointment.by KGM - Huntington's Disease Support Center
I'm taking CoQ10, after what I read in the lighthouse...by KGM - Huntington's Disease Support Center
There's a good article on supplements on the lighthouse in the treatment section called "Treatment Now"...if you click on each one, it'll go through how much you should take and the reccommended brands...by KGM - Huntington's Disease Support Center
Hello, I just started taking supplements...I have decided to go slowly on the fish oil; that one gives me an aftertaste...Also, I was wondering if anyone had any suggestions on how to take the Trehalose and Creatine--I have those two powders, and it seems that they don't dissolve very well. My husband suggested I make shakes...I've tried to mix them in pudding and it just tastes really grainyby KGM - Huntington's Disease Support Center
Hello and welcome...I just went through the testing processing recently myself, so can definitely relate to how you felt. Hang in there!by KGM - Huntington's Disease Support Center
Great job!by KGM - Huntington's Disease Support Center
I didn't have any neuropsych testing... Good luck!by KGM - Huntington's Disease Support Center
Hello, I just wanted to let you know I really relate to your story. I had to overcome a lot of adversity growing up with poverty and my mother's illness...I also went to school for a long time. I have reached the point in my life where I had a lot of the things I missed out on growing up--a house, cars that actually work, good health insurance for my family, etc... When I got my + resulby KGM - Huntington's Disease Support Center
Hello, Deborah... I'm pretty new here too; just tested + recently... I also put it off for a long time...I went to CompGene in Milwaukee, WI; they keep everything confidential. I signed so that the information would not be released to any 3rd parties...It cost $500. I don't think you are justifying...I think it is very important to try to enjoy life with our loved ones no matter what. Iby KGM - Huntington's Disease Support Center
Will, Thanks for the info...That seems reasonable, about $62 per month...I was worried that it would be a lot more. I am also wondering where you buy your supplements...Do you go to the same site or use different ones? Thanks again, KGMby KGM - Huntington's Disease Support Center
How much do all those supplements cost?by KGM - Huntington's Disease Support Center
I found some good info on: Coenzyme Q Omega 3s (EPA, DHA) Creatine Blueberries vit D Also, on another website, they said SSRIs are good for neuroprotection.by KGM - Huntington's Disease Support Center
Sorry about your results...I just learned about my result a few weeks ago. It has been difficult and depressing...But, I know eventually, I'll have to really accept it and try to put the plans that I have in motion...by KGM - Huntington's Disease Support Center
Yes, I have to say as well that I don't blame my parents at all. This situation is so out of anyone's control that I couldn't blame anyone. I hope our son never gets sick, but I know that is definitely a possibility and that does bring some guilt as well... I just hope to tell him and show him that he was our miracle baby and we love him more than he can imagine. And, I hope if he doesby KGM - Huntington's Disease Support Center
I know exactly where you are coming from. I just did the testing a few weeks ago, and it came back positive. It was something I thought about for years, too. Lately, I pretty much thought I had it, but I hated to give up the little possibility that I might not have it. Once you see it there, in black and white, you can't go back. For me, as I approached the time when my mother started showing symby KGM - Huntington's Disease Support Center
I am almost 33 and tested positive recently. I have 44 repeats and I'm starting to have a few symptoms. I have a husband and 2-year-old son. My mother had HD (although we didn't know what it was at the time; she died at age 44. I have 2 brothers who have not been tested.by KGM - Huntington's Disease Support Center
That's great that he is standing up for you!by KGM - Huntington's Disease Support Center
Well, I have one symptom I know for sure--I have one finger that moves by itself (chorea). Also, I have had some weight loss; which I thought only happened when someone was more advanced, but I read an article that said that it can happen even in presymptomatic people. Some other stuff I'm not sure about--it seems to me I've been kind of clumsy since college (not sure if that's just me or the HD)by KGM - Huntington's Disease Support Center
Hello, everyone. I am 33 and just had the testing done about 2 weeks ago. It was positive for HD. My mother had HD (although we did not know that what it was at the time) and died at 44. My family and I are just trying to get through each day right now. It still seems kind of surreal that all those hopes and dreams of growing old with my husband and watching our son grow up will not be possible nby KGM - Huntington's Disease Support Center