Even thou life throws you curve balls and sometimes you cant dodge them......you get knocked down, and its up to US to get back up! A smile at yourself in the mirror makes you have a good day. Try it and see!by papple_juice - Huntington's Disease Support Center
Hey I am Megan. My mother has hd and is in a nursing home. My sister and brother and myself are at risk. I want to get tested but I am too afraid at the time to know, I think about HD all the time and I think I do have it. I think that you are very brave for getting tested!!!!! I can imagine your stress and worries right now! I am here for you, we are all here for you! I have a fb....go on it daiby papple_juice - Huntington's Disease Support Center
You got tested and dont have it? YAY! Be happyby papple_juice - Huntington's Disease Support Center
Please let us know what the results are. I wish you the best!by papple_juice - Huntington's Disease Support Center
What kind of movements are you having? Do you they feel like muscle nudges? I am getting those, and yesterday my thumb was twitching and shaking and was really weak.by papple_juice - Huntington's Disease Support Center
This will be a blessing and a miracle if it works! I will pray that it does! Maybe I can have my Mom back =(by papple_juice - Huntington's Disease Support Center
Now I am starting to get tremors in my thumb...just my right one. I still have not gotten tested. I am STILL worried sick. Are tremors a part of HD?by papple_juice - Huntington's Disease Support Center
my mom sleeps all day too. she is in the last stage of HDby papple_juice - Huntington's Disease Support Center
OH NO! I am on an electronic e cig! They work awesome! ;pby papple_juice - Huntington's Disease Support Center
I don't think anyone can answer this for you. I am so sorry that you have to go thru this. I am at risk and I have a 9 month old baby boy. When I was pregnant I had the option to test him for the HD gene. I took several days to think it over. In the end I decided not to have him tested. Because if he was positive.....there was NO way I could have an abortion after seeing him on the ultrasound picby papple_juice - Huntington's Disease Support Center
dear Blue, I know what you are talking about. I have that same anxiety about HD and about passing it to my son. Thanks for sharing your story. I know this is not easy for anyone. The way I see testing (for me) is that if I got a negative result I would def live my life differently. I would have more ambition, calmness, and happiness in my life. I feel like being at risk for HD and not knowingby papple_juice - Huntington's Disease Support Center
Thanks everyone! You all have shined light on the issue, and I appreciate you all taking the time to reply.by papple_juice - Huntington's Disease Support Center
Cookie did you start to see symptoms of HD in yourself?by papple_juice - Huntington's Disease Support Center
There should be no JUDGEMENT on here. People need to vent....I do it too, and I don't expect to be judged.by papple_juice - Huntington's Disease Support Center
I am wanting to get tested, I am at risk. The reason why I want to get tested is because I am having muscle nudges and spasms. Thats the best way I can describe it. If this wasn't happening to me then I would not get tested. I just think that this maybe HD. Did anyone else experience these muscle twitches and nudges and decide to get tested? I have also had anxiety and some depression my entire lby papple_juice - Huntington's Disease Support Center
I am so sorry to hear that about your brother cookie. =( I hope he is doing good. When did you get tested? Were you having symptoms of HD?by papple_juice - Huntington's Disease Support Center
judy me too. all phd in my family had red or blonde hair.....so i was hoping that my sister and i didnt have it bc we look more like our father....but i guess not.by papple_juice - Huntington's Disease Support Center
ScottS- You can call me Megan =P I am sorry that you have to go thru this, my Grandmother had those outburst episodes of anger, sadness, over the top happiness and many more emotions that were mixed in there. I know what you are going thru. I know it is scary and hard and a psychological strain for you. If you had gone and got the car traded in, she may have been confused. It always seemed toby papple_juice - Huntington's Disease Support Center
Wow your HD history sounds like mine.....it is very scary. I am so so happy for you. I needed your courage and words of wisdom in my life....thank you. I am sorry that you had to go thru this as well. I am sorry to hear about your Father and Brother who killed himself, and your Brother in a nursing home. I am so very very sorry.by papple_juice - Huntington's Disease Support Center
wow. In my family ALL the PHD has been blonde hair blue eyes or red hair green/blue eyes. My mother had blonde/blue and I have brown/brown. Wonder if that is the red hair gene thing you spoke of......just curious.by papple_juice - Huntington's Disease Support Center
Hey maybe she just had no appetite or an upset stomach. Some days I dont eat much either. That could be it. My mother loves dairy queen LOL she had a sweet tooth and she wouldnt touch her fries! So maybe it was just a mood where she wanted something that wasnt there LOLby papple_juice - Huntington's Disease Support Center
Oh and I would opt for the nearest testing facility. Thats just me, but please make sure you have your family and friends for support.by papple_juice - Huntington's Disease Support Center
Well is it bad weather and dangerous to drive? Don't drive in severe weather. I would get the testing where you can. If you want to drive then go....just make sure you are ready! Good luck and don't drive yourself insane with the waiting! PLEASE let us know what your gonna do!by papple_juice - Huntington's Disease Support Center
Sounds good to me!!!!!by papple_juice - Huntington's Disease Support Center
There is one gene on chromosome 4 associated with red hair but it is too far from the huntingtin locus to have appreciable inheritance linkage. Can you explain this in a simple way? What is locus? =)by papple_juice - Huntington's Disease Support Center
I looked at her photos and have not seen her. I hope she is found soon, I will be praying that you find her and she is safe. I am so sorry to hear this. Meganby papple_juice - Huntington's Disease Support Center
Ok I have been wondering this a LONG time. Do the children of an PHD person usually have the same hair and eye color and have similar features? Or can it affect any of the children the same? Because HD is a genetic disease and hair and eye color are genetic....? Just always wondered that! For example- PHD mother has blonde hair and blue eyes...but has 2 daughters that favor the fathers look moby papple_juice - Huntington's Disease Support Center
Michelle I am sorry to hear that your son is at risk and that your dear husband passed away. I know that must have been so hard for you. I am glad that you got to share those precious moments with him and that he could still laugh after all that he had to go thru. God Bless you and thank you for sharing this with me. I read your post and cried because I am touched by your kindness and your loss.by papple_juice - Huntington's Disease Support Center
Shar Thank you! You have a good attitude about life, I am going to try to do the same.by papple_juice - Huntington's Disease Support Center