Debbie, I just wanted to share my favorite saying... "Life is hard by the yard, but a cinch by the inch" I definately agree with planning ahead, but I find that if I focus on the moment at hand, I can enjoy today. Since my husband was diagnosed I was spending a lot of time fretting over not being able to plan for the future. Now I realize that I have to enjoy today. Have a grby Bobbih - Huntington's Disease Support Center
Wow...thanks to all of you for the advice. I am sitting here feeling so much better knowing that there are so many people out there that understand what we are going through. My family tries to understand but they just don't get it. As far as the depression goes, I know that that is a possibility and the doctors are aware of it. Dennis doesn't think that he is depressed but I think that mby Bobbih - Huntington's Disease Support Center
Hi bj, Thanks for the welcome. My husband is able to care for himself at this point. He fell once or twice in the past 2 years. He will not let me help him with anything. How long has your husband been diagnosed? I am so glad I found this site. This is the first time that I have talked with anyone who understands what I am dealing with. Thanks!by Bobbih - Huntington's Disease Support Center
Thanks....your right. I am going to go to the grocery store. I really appreciate you helping me!!!by Bobbih - Huntington's Disease Support Center
I didn't see the end of your message. It must be hard to see your wife in a nursing home. I know my mother-in-law is in a nursing home and she is really bad. She has hung on for 15 years. For about 7 years, she has been unable to communicate, doesn't know us...etc. It is so hard for my husband to see her. Good luck to you and your family!by Bobbih - Huntington's Disease Support Center
The movements really bother Dennis. I will definately talk to the doctor next week. Thanks for your help!by Bobbih - Huntington's Disease Support Center
I don't know that the symptoms are being controlled. When he went on the meds he was having movements mainly with his legs (tapping and kicking). That was 2 years ago. When they added the Keppra, it was because he started with the twisting. He still has all those movements and has since started with facial ticks and noises. I can't say that I have seen an improvement but we always think thatby Bobbih - Huntington's Disease Support Center
Eric - Thanks for responding. I agree that the meds are necessary to control the symptoms and I wouldn't want him to stop taking them. I was really hoping that someone would say that there was a drug out there that would help with the symptoms but wouldn't make him so tired. I guess I am being selfish because it makes me sad to not have him up and involved in our family activities. He telby Bobbih - Huntington's Disease Support Center
I am 42 y/o and my husband Dennis is 51 y/o and has HD. We have been married for 17 years. We have 2 sons that are 16 and 12. Dennis' mother has HD and has been in a nursing home for 15 years. She is in end-stage but has been for a long time. My husband was diagnosed 2 years ago. He had symptoms for at least 5 years before being diagnosed. He no longer works and was able to get disability.by Bobbih - Huntington's Disease Support Center
This is my first post on any internet site so hopefully I won't do anything wrong. My husband, Dennis, was diagnosed with HD 2 years ago in January. His mother has been in a nursing home for 15 years with HD. Dennis is on Depakote and Kepra. He is soooo tired all the time. Christmas day he got up for the kids to open gifts and then went back to bed until 6:30 pm. He sleeps everday all daby Bobbih - Huntington's Disease Support Center