I was able to get a discharge for my husbands student loans. He is the person disabled by hd and they were his loans. The rules are different for Plus loans. Because the loans weren't made for you to go to school and under your SS number I doubt you'll be able to discharge. You may be able to try forbearance but that will only be temporary. Good luck.by indigo9585 - Huntington's Disease Support Center
My husband always has to have a glass of water next to him. He is not taking creatine and has been doing this for quite some time now.by indigo9585 - Huntington's Disease Support Center
Medicaid will depend on the State you live in. Medicare is federal and Medicaid is administered at the State level. Each state has different Medicaid laws. He should still apply for SSDI. If he hasn't worked and it was because of symptoms they will sometimes go back retroactive. He should at least apply and try. I believe it is 7 or 10 years of no work which makes you ineligible. SS now hby indigo9585 - Huntington's Disease Support Center
Oh boy am I familiar with this one. I could write a book about everything that my phd husband did. From telling the police I'm sleeping with the township trustees to calling people in the middle of the night and making threats. He almost burned the house down trying to burn the people out of his mattress. My 'boyfriends' were hiding on the roof, in the neighbors camper and in the closets. Iby indigo9585 - Huntington's Disease Support Center
Wow. For everyone at risk or with kids at risk this is great news. Everyday I pray for a cure. I realize it is probably too late for my husband as his condition is pretty advanced, but I will always pray for our kids at risk. Fingers crossed.by indigo9585 - Huntington's Disease Support Center
This is exactly what I experienced with my husband. Cheating, lying, abusing alcohol, prescription meds, and the verbal abuse. Everything was my fault. He would call his mother and tell her all sorts of lies about me. When I'd confront him, he'd try to justify it by taking something small and insignificant and making it seem huge. Everything was my fault. Example: After work one afternoon I stby indigo9585 - Huntington's Disease Support Center
When the he lost the urge to quit drinking he was on Lithium, Seroquel, Cymbalta and Ropinrole (for chorea). Now they've taken away the Seroquel and he's on Haldol and clonzapam in addition to the Lithium and Cymbalta. He has other meds in there too but these are the big ones. His OCD right now is sleep. He tells every doctor he can that he is not sleeping yet all he does is sleep. Thby indigo9585 - Huntington's Disease Support Center
Been there except it is my husband who also has a CAG of 45. His would also self medicate and would drink and take prescription pain killers until I threatened to leave and then he'd stop cold turkey. That would last a few weeks or maybe a month or 2 and then he'd start up again. Yes, it was always my fault too. He is now 47 and I had to put him in a nursing home just about 2 years ago because tby indigo9585 - Huntington's Disease Support Center
Howard, This is awful and unacceptable. I would consult an attorney. A false 911 call or filing a bogus police report is a crime. Telling the police you had a gun in the house is an outright lie. Saying you were dangerous is slander. I realize you are not out for monetary gain but legal action against such treatment may help put this injustice in the spotlight. Chrisby indigo9585 - Huntington's Disease Support Center
There are numerous cases of Vets being approved for HD. Most of them were diagnosed before discharge. No one knows why 2 people with the same CAG can have onset years apart. I have no doubt that the stress of military service, vaccinations and intense training takes its toll on every service person. A person with an already compromised system, known or unknown, is bound to be affected inby indigo9585 - Huntington's Disease Support Center
Thanks Fred. I've been working with our local COE since 2008. The trick in this whole situation is this: The VA wants to see service connection. Even though my husbands service records show him being treated for unexplained falls, depression, psychological issues and dizziness, BECAUSE they don't specifically say these things were caused by HD, they will not service connect them. Instead thby indigo9585 - Huntington's Disease Support Center
This is interesting news. My husband applied for VA disability in 2008 for numerous problems. They granted him only 10% for sinus problems and we've been in appeals ever since. We found evidence in his medical records of early stage HD problems, unexplained falls, memory issues and so on. So far the VA has ignored everything. A year and a half ago he had an appointment with a Dr. to update his sby indigo9585 - Huntington's Disease Support Center
My phd husband suffered from Migraines. To the extreme. He used Imitrex syringe but if he didn't catch it fast enough it was a trip to the ER. We figured his were sinus related due to his years in the service. Now that his hd has progressed he is kept on a Fentanyl patch for pain and this seems to keep the migraines down to minimum. His mother (no hd and not at risk) also suffers from these tyby indigo9585 - Huntington's Disease Support Center
I think the advantage before an official diagnosis is that you can get your ducks in a row. Consider Long Term Care insurance and other options. I sure wish we had that. Even with Medicaid my husbands nursing home costs me $2600.00 a month. With 2 young kids at home this is a huge burden. Once the diagnosis is official, all your insurance options are off the table.by indigo9585 - Huntington's Disease Support Center
Nalo, I would start by keeping a journal of all the irrational things she does. Everyday document good day/bad day. If its a bad day, list why. Especially document if the kids were affected. I remember one time my husband threatened our 5 year old daughter because the tv was too loud. My daughter was devastated and so scared she was afraid to go to sleep. In our case the police were called numby indigo9585 - Huntington's Disease Support Center
Oh boy have I been down this road. My hd+ husband used to do it all the time. Before we knew he had hd, he would call his family and make up stories. Crazy stuff. After he was diagnosed I realized it was the hd even though he denied it. Heck, he still denies that he has hd symptoms and he was placed in a nursing home a year and a half ago! His Neurologist is great and listens to my concerns butby indigo9585 - Huntington's Disease Support Center
Stephanie, Sorry you have to be here but glad you found us. My husband was diagnosed at age 40 with a CAG of 45. That was in 2008 and our kids were only 5 & 6. We started out by seeing 2 different neuros at University Hospitals of Cleveland but now see one closer to home (we live an hour west). In 5 years a lot has happened and I've had to admit that I couldn't be his full time caregiver. Hby indigo9585 - Huntington's Disease Support Center
He was given Mirapex. He had been taking Ropinerole for his chorea/dancing legs and had complained that it wasn't working anymore. They started him out on a low dose and right away the mood changed. When I called the Dr. they increased the medication saying he was given a very low dose. Well, needless to say that was the wrong direction to go. Of course all this is happening over a long weekendby indigo9585 - Huntington's Disease Support Center
I'm so sorry to hear this Judy. The only thing I can think of is maybe something is raising his dopamine levels. When my husband went through his violent anger problem they put him in the hospital psych unit and detoxed him off of almost everything and then started over. We'll never know for sure, but one of the medications he had been given were medications they also give to Parkinson's patienby indigo9585 - Huntington's Disease Support Center
My phd had symptoms as you did Gabbygirl and his Neuro didn't require any genetic counseling or a psych evaluation. It will depend on the Dr. and your symptoms. Time was of the essence in our case because he was on medical leave from work and they needed a diagnosis or he was going to have to return to work or get fired. Every Dr. and situation is different and if you have a family history tby indigo9585 - Huntington's Disease Support Center
My husband did something like this once. He just froze and couldn't move however he didn't have the droopy face or stroke symptoms. At the time he was seeing a movement disorder specialist at University Hospitals of Cleveland. His Neuro said Parkinsons patients often have this issue where they freeze. It doesnt last long and doesn't leave any real 'symptoms' behind. He thought that, although unby indigo9585 - Huntington's Disease Support Center
Sorry you are going through this. I went through this with my husband in October 2011. He had started having delusions and the same story of him thinking I had boyfriends. He thought they were on the roof, in the closets and even sliced open his mattress looking for them. His neuro changed his medication and things got worse. They got so bad he tried to burn the house down while the kids and I slby indigo9585 - Huntington's Disease Support Center
If he's in the Military then I'd say go do the test. If he is positive for HD and tested while in the service he will qualify for 100% disability. If he waits until he's discharged then he'll have to prove its service connected...very hard to do. If we could go back and do things over we would in a minute. My phd had early symptoms while in the service on Sub duty. Falls, lack of concentration,by indigo9585 - Huntington's Disease Support Center
For my phd, his Neuro did the test at University Hospitals of Cleveland medical center. Because his symptoms were pretty pronounced and because we were playing a time game with his Employer and FMLA they didn't make him go through counceling. Luckily his Neuro knew that we needed to have a diagnosis or risk my phd being fired from his job and losing his disability insurance. At the time UH wasn'tby indigo9585 - Huntington's Disease Support Center
So sorry to hear this Judy. Maybe its time for a medication change or update. My husband has to stay on a pretty intense cocktail of medications to keep him from becoming difficult. They tried backing down a few of the meds last fall and it didn't work. In the last year his depression meds were doubled and they started a low dose of Haloperidol. Luckily we've got a pretty good neurologist whoby indigo9585 - Huntington's Disease Support Center
djcloc's got a good list. I would add to expect being the scapegoat for the phd's family. My phd takes his anger and frustrations out on me then tells his family what a horrible person I am. Never mind that they've only seen him once in 5 years. It hurt a lot at first and our kids don't understand why that side of the family is so cold, but I've learned to accept it. We live out of state so I dby indigo9585 - Huntington's Disease Support Center
In Ohio you need to call your County Job and Family Services office. They handle Medicaid.by indigo9585 - Huntington's Disease Support Center
Also check with Easter Seals in your area. They pay nursing assistants to come into peoples homes and help with daily living. I never knew that until my neighbor told me that this is what she does for a living. Its worth a try.by indigo9585 - Huntington's Disease Support Center
My husband's short term memory is getting pretty bad. Today they added Namenda to his medications. Does anyone have any experience with Namenda and hd patients? Thanks, Chrisby indigo9585 - Huntington's Disease Support Center
Each State has different Medicaid laws and each state will let you retain different amounts of $$. You need to have a free consult with a Medicaid lawyer in your state.by indigo9585 - Huntington's Disease Support Center