Happy Anniversaryby mjgarcia - Huntington's Disease Support Center
Hi Carla I have had similar problems at first we were thinking these were blackout... I have fallen on the stairs, in the bathroom and hit my head on the sink several times but the last one was when I went face first into the coffee table... they is no sign of when or where this is going to happen... my dr's came together and decided that it was the hd not being able to regulate my blood pressurby mjgarcia - Huntington's Disease Support Center
Thank all for the loving words and thoughts and prayers are lives are in a whirlwind right now so I don't know how much I will be able to keep up with I just really wanted you all to know I appreciate every thingby mjgarcia - Huntington's Disease Support Center
Thought I would give a short update...my husband my friend my caregiver my everything has gone to be with God... his right kidney didn't wake up from the surgery and he went into renal failure and his heart couldn't take it. he died early Sat morning Oct 17th... I just don't know if I will have the strength for all of this... 2009 has not been a good year at all... I lost my Mom... found out I haby mjgarcia - Huntington's Disease Support Center
You speak like a well used Father Eric and yes I have faith in them alsoby mjgarcia - Huntington's Disease Support Center
It has been awhile since I have posted anything. I just wanted to stop in and say hi and let you all know I am still around. I have been busy since my positive test results. I have had some break downs and all but feel I am coming to grips with all of this. My SSDI has been approved along with my long term disability from my employer. But just when things seemed to be getting back to some whaby mjgarcia - Huntington's Disease Support Center
My mom had very bad violent outbursts but did not believe it was a problem and would never get any kind of help for them... it definitely put a strain on her relationships with all her children... some of us where able to eventually understand that this was the disease as we got older and some of us where never able to have a relationship with her again... this is a very difficult situation... Iby mjgarcia - Huntington's Disease Support Center
Barb, Just wanted to let you know that I will remember you as long as I can your stories and advise (along with so many others on here) have helped me so much and I only wish and hope that I will be able to be so inspiring to others and myself one day. You are lovedby mjgarcia - Huntington's Disease Support Center
Thank you all for your very kind wordsby mjgarcia - Huntington's Disease Support Center
Barb, I know what you are talking about. I also have problems with this I can not watch Tv it takes to long but I have found that I can watch my favorite shows online and start and stop them when I need to also I have to watch them when there is no other distractions. The same goes for even reading the post on here or anywhere else I am lost half way through so I have to read them over and over aby mjgarcia - Huntington's Disease Support Center
Each day is a struggle, as I try to be the same. But I am different, in every single way. When I lose control it's hard to keep myself in balance with life and the people in it And some days the depression? It defeats me? with this life that HD has built for me. I know I have to live with this and try to over come each obstacle that comes my way... But some days are just Bad Daysby mjgarcia - Huntington's Disease Support Center
Thank you for sharingby mjgarcia - Huntington's Disease Support Center
I am sorry to hear of your loss. My thoughts and prayers are with youby mjgarcia - Huntington's Disease Support Center
This is a awesome letter... Thanks Pattyby mjgarcia - Huntington's Disease Support Center
Doctor put me on Valium today... let see if I will be able to relax and get some much needed sleep now... I hope soby mjgarcia - Huntington's Disease Support Center
Thanks for readingby mjgarcia - Huntington's Disease Support Center
This sounds so much like what I have been feeling.... I want to get out of the house but I can't I just sit in my room day after day... when I do go out to wal-mart or something it is late at night in the hopes I don't run into someone that I know. Or When I finally get up enough courage to want to get out everyone is to busy or tired to want to take me. Since I can't/won't drive anymore I reallyby mjgarcia - Huntington's Disease Support Center
Some times when I can't sleep I write and I thought I would share some of my more recent ones hope you don't mind................... Has HD Won I feel as if I am no longer whole and sadly I am missing me I feel as if I am locked out And cannot find the key I fight I struggle I want to kick and scream Please let me back in And wake me from this dream I need a clue About whby mjgarcia - Huntington's Disease Support Center
I know for certain that we never lose the people we love, even to death. They continue to participate in every act, thought and decision we make. Their love leaves an indelible imprint in our memories. I hope you find comfort in knowing that your lives have been enriched by having shared his love. I am sorry for your loss my thoughts and prayers are with youby mjgarcia - Huntington's Disease Support Center
you are such an inspiration... this is so wonderful.. I am so happy for you... keep up the good workby mjgarcia - Huntington's Disease Support Center
this could be the next HD event LOLby mjgarcia - Huntington's Disease Support Center
Just want to welcome you and wish you luck. I can't help to much with advice on the confidentiality though but I know some one on here will be able to help. just wanted to say My mother also alienated everyone and would refuse to talk on the phone to any of us. She also did not see a Dr for any of her HD symptoms so I can relate very well. Any way it was nice to meat you and again good luck withby mjgarcia - Huntington's Disease Support Center
Yes it was and my mom was also tested there. I only went to get info on taking the test because like I said I knew that is where my mom went to test and I ended up with a diagnosis... response from family was well we kinda already knew didn't we... yes we did but there was still hope and in my mind I will not feel totally convinced until I have the test. I have nothing against the neurologistby mjgarcia - Huntington's Disease Support Center
JL Thanks for the wonderful info... as of right now I was only thinking of my peace of mind... you have shed light on there is a lot to be accomplished that I have not been thinking about or even have an idea of were to start... you have made this easier for me to find a starting place ... thanks so muchby mjgarcia - Huntington's Disease Support Center
This is my thought exactly... for just my peace of mind and to leave no doubts I believe I have to be tested... even If I have to pay for it. It just might take longer to come up with the money and time is kinda an issueby mjgarcia - Huntington's Disease Support Center
Sorry to here of your results... you have been in my thoughts and prayersby mjgarcia - Huntington's Disease Support Center
Thanks Barb You have more help to me then you could ever know... I am going to talk to my Dr on Monday to see if we can do the test through him... I know myself and until I have the test my mind will not be at easeby mjgarcia - Huntington's Disease Support Center
I went to the Hereditary Neurological Disease Center today and was told by the neurologist after all the tests and questions that I did not need to take the blood test since he was able to diagnose me with out it and that I do have Huntington's... my confusion is that I thought that is what the test was for or is just for people that are not showing any symptoms? He told me that the test is noby mjgarcia - Huntington's Disease Support Center
Happy Easter to everyoneby mjgarcia - Huntington's Disease Support Center
This is great I will add it to my health portfolioby mjgarcia - Huntington's Disease Support Center