Cymbalta for depression - Zyprexa for verbal tics - temazepam for sleepingby AR - Huntington's Disease Support Center
I know - I have not posted as much lately - generally I Have been doing better - keeping busy But with summer coming my time with the kids decreases alot - especially my youngest- I am on a new med - that may be contributing It hit me like a ton of bricks today I am not sure why - you are right it will passby AR - Huntington's Disease Support Center
I am so blue from all the time alone - with summer coming and the time I spent with my ex=wife and kids decline dramatically - I am so depressed - right nowby AR - Huntington's Disease Support Center
Thanks for the tip Deborah, I am going to buy one - I will let you know how it works. Barb - I am already taking sleeping medication, I wake usually once during the night but I am not really that exhausted when I wake up. Dave - My chorea is not that bad other than this - there was some checklist I completed for TBZ and I didn't check one thing on the list - i still go to the gym, drivby AR - Huntington's Disease Support Center
Every single morning - without fail - all three of my blankets and sometimes the sheet itself is on the floor - does anyone have any ideas for keeping the blankets on the bed- Thanksby AR - Huntington's Disease Support Center
Good luck Kim - you deserve a chance to get a chance to get your mind of things for a while - hopefully this will be beneficial.by AR - Huntington's Disease Support Center
I signed up for ACR 17 but was excluded solely because I live alone and needed someone to help me monitor taking the pills - I offered to bring someone with me the two visits you needed someone - to bring someone with you but this was not good enough. This seemed liked an incredibly lame reason for a study that is taking way to long - I am not on TBZ or any other drug - only that exclusion.by AR - Huntington's Disease Support Center
I have a questions for the doctors and other people with HD. I have never a single MRI to see how things are progressing. They just look at my systems through very rudimentary tests. I have gone to three different neurologist with the same process. In fact the only time a had an MRI was I was doing predict study - so clearly there able to tell something from that My question for otheby AR - Huntington's Disease Support Center
I have been taking Glutathione as part of my supplement regament for a few months - I have been happy with the result - most of my symptoms are physical and my forgetfulness has reducedby AR - Huntington's Disease Support Center
I see a Aurvedic doctor here in the US - Can you tell me what specific medicine he takes and what his improvement has been.by AR - Huntington's Disease Support Center
Thanks Marsha Actually two of the supplements I take for this very reason for the importance of glutamate are NAC which is a precursor to glutathione, as well as glutathione itself -is this something that you recommendby AR - Huntington's Disease Support Center
I was shocked to learn that TZN works by decreasing the dopamine in the brain. According to Wilkipedia Dopamine has many functions in the brain, including important roles in behavior and cognition, voluntary movement, motivation and reward, inhibition of prolactin production (involved in lactation), sleep, mood, attention, and learning. Dopaminergic neurons (i.e., neurons whose primary neurby AR - Huntington's Disease Support Center
Another option you should consider is adoption. We adopted both of our kids as new borns after I tested gene positive - We couldn't have been happier and we won't have to worry about passing on the HD. Plus once you choose adoption there are so many options (new borns, foreign and foster kids that you could speed up the process tremendously.by AR - Huntington's Disease Support Center
Eric I couldn't agree more - I just went to the convention and 90% of the talk is about the cure - this is always some catchy slogan about how this is the last generation with HD, how we are working hard on the cure, everything about the mythical cure - Well if that there only measure than HDSA has failed as an organization for 25 years and they are no closure to a 'cure' today than theyby AR - Huntington's Disease Support Center
Excuse me if I don't back flips - 16 years - of dead ends and false hopes this like another crap diversion another diversion- to still be at the mice stage for any cure and people like Wexler and other acting like this is any meaningful than every other crap dead-end we've been is BS- enough already with false hopes - its been 16 years stop acting like every experiment on some mouse is significanby AR - Huntington's Disease Support Center
Excuse me if I don't back flips - 16 years - of dead ends and false hopes this like another crap diversion another diversion- to still be at the mice stage for any cure and people like Wexler and other acting like this is any meaningful than every other crap dead-end we've been is BS- enough already with false hopes - its been 16 years stop acting like every experiment on some mouse is significanby AR - Huntington's Disease Support Center
Deb - I went last year and plan on going this - the most heartwarming part is seeing all the people - especially families with HD and there struggles - however the whole can be very overwhelming and emotional - by Sunday morning I feel very drained - so going one day is a good idea - I think more than one day would be too much - see how he feels and if its too much by mid day than think about leby AR - Huntington's Disease Support Center
I have the Wii fit and it is very hard to do and my balance is not that bad - I can bike due the treadmill but the that is to tough the board is small- and the games are not designed for PHD's - so I found it to frustrating but I don't play very often - I would much rather go to the gym, do real Yoga or bike than the Wii. Thanks for brian game will - I am going to order that first and thenby AR - Huntington's Disease Support Center
I have the Wii fit and it is very hard to do and my balance is not that bad - I can bike due the treadmill but the that is to tough the board is small- and the games are not designed for PHD's - so I found it to frustrating but I don't play very often - I would much rather go to the gym, do real Yoga or bike than the Wii. Thanks for brian game will - I am going to order that first and thenby AR - Huntington's Disease Support Center
Doubters would find a way to support someone even if they disagree - I don't see that here not with just this but anything that falls out of your little box - It makes no sense to me that people get called crazy for trying something new - this a non-curable disease with no way to stop the progression - for god sake - what is my choice - it is not in my nature to sit around waiting as my diseby AR - Huntington's Disease Support Center
I am proad to Sharky II - but I prefer Shark Boy (as in Lava Girl) - a super hero - I am glad to be outed by Phil and proud to try - the reason I didn't say anything sooner is is a no-win siutation - Even if I claim to improve of have proof -I am sure all the haters will come out and accuse me of having mental issues - and thus I can't possibly know if I improve. It is a classic catchby AR - Huntington's Disease Support Center
Jl and Shar: As a fan of House - 13 absolutely has a personal experience with HD - her Mother was symptomatic for many years - 13 blames herself as an adult for not being to better understand as a kid that her Mothers outburst were from HD - It is very moving - I think people in the community are always looking for ways critique the way the disease is portrayed. In this case it was the faby AR - Huntington's Disease Support Center
This article is one of the most positive and most hopeful articles I have seen in a while Potential gene therapy that worked in-vitro See article Can any of the experts comment?by AR - Huntington's Disease Support Center
As many of you may or may not know Phil Hardt is a strong advocate of Stem Cell Treatmnent - from Sharks - read his testamopny here. I have spoken to Phil extensively about this treatment and I am considering this. My main concern is that in addition to being an advocate for this treatment - he is also a director for the company,so there is a conflict of interest. Has anyone triedby AR - Huntington's Disease Support Center
Leigh or Marsha I was thinking about doing this study - do you know off any risks or other issues I should consider before doing the study.by AR - Huntington's Disease Support Center
Not sure how it works with partial disability but with full-disability you can earn up to $800 per month with no questions asked from the disability - Not everyone can or wants to quit working completely so working PT may work for him.by AR - Huntington's Disease Support Center
What part of PA is Sayre?by AR - Huntington's Disease Support Center
Jessica: For starters I am in Chester County, right around the corner from you - Welcome to the group - and sorry about the loss of your mother - as everyone said it is probably too soon to test - I tested after when I was closer to 28. The reason I tested was also to start a family. Both me and my brother tested positive, and I decided to adopt, so I have two beautiful girls who areby AR - Huntington's Disease Support Center
I just bought the magazine too - slightly embarrassing - but oh well - great article - Katie - good job - very tough that you are still not talking to your Momby AR - Huntington's Disease Support Center