my man and i are getting married november the 26th this year while he is still ok we have been together for 21 years and finally getting married..... hopefully we can make it to 30 years there will be never another man like him kellieby birdgirl - Huntington's Disease Support Center
yes i do agree huntingtons folk do get obbsesive over things, one time was a bit funny we have a huge olive tree covered in olives my partner no mater what wanted me to get up the tree its huge and pick the damm olives as we cant waist them omg i cant handle heights but still got up the bloody tree and got some picked for him and ended up going mouldy in the fruit bowl lolby birdgirl - Huntington's Disease Support Center
My hubby in new zealand has been doing this study and has been going for over a year now hes actually there at the hospital today getting a follow up cheers kellieby birdgirl - Huntington's Disease Support Center
i found the twitching and movements stop while sleeping when my hubbies feet are not going for it hes a sleep as soon s he starts to wake it starts again, it was the same with his mum who had huntingtons cheers kellieby birdgirl - Huntington's Disease Support Center
Sure is a hard road. The sitting on the couch thing that is deffinatly a huntingtons issue it drives me crazy but im learning to deal with it. Its not so much they dont want to get up and do stuff its the brain not telling them ( the cognitive ) planning and putting the consept into an actual act, but the brain not co - operating with the body..... so it does not happen. Depression is also a bigby birdgirl - Huntington's Disease Support Center
lots of hugs i had tears in my eyes reading this post, we are so lucky here in new zealand as we do have care facillities for folk with huntingtons, we also have a huntingtons contact for any trouble any time of day the help is there we are so lucky, i did not know how lucky untill reading the problems you are having kellie x xby birdgirl - Huntington's Disease Support Center
well said its hard not to though kellieby birdgirl - Huntington's Disease Support Center
my hubby just appears to have slipped over into the next faze of things. lids never go back on things lights are never switched off after leaving the room, flushing the loo has stopped lol.if the dishes are done the are hurled into the cupboard with it all fall out when you open the doof omg...i no longer have a knife and fork draw it all gets thrown into one all mixed up.. oh well...... when theby birdgirl - Huntington's Disease Support Center
awesome thank you i will have a lookby birdgirl - Huntington's Disease Support Center
i found knowing is better than not knowing kelby birdgirl - Huntington's Disease Support Center
no we didnt get that far i fell pregnant and lost the bub and cause of the etopic pregnancy it stuffed me up concieving i was so sad at the time i would have had an18 year old child now.... but then hubby got diagnosed with huntingtons and then i thought it may be a good thing we where unable to have kids, but not think it at the time, but on that note i would have bub tested in the womb thereby birdgirl - Huntington's Disease Support Center
my heart goes out for you... i hear you..... i dont have huntingtons but my partner does.....i hear you want children its a hard one., but think over the next few years or so they are going to make break throughs new drugs new treatments, it gives us some hope may be not in time for this generation but hope for the next. kelby birdgirl - Huntington's Disease Support Center
Auckland Waitakere City and you?? kelby birdgirl - Huntington's Disease Support Center
just wondering if there are any one from new zealand on this support group cheers kellieby birdgirl - Huntington's Disease Support Center
my partner is involved in a creatin study through Auckland hospita nzl its a 3 year trail, he is monitored very closley bloods blood pressure things like that on a regular basis. I know it can deydrate you so drinking lots of water does help, the urine smells stronger than normal when using creatine. He has nearly been on the trail for a year now he says he is clear headed but it has at this poinby birdgirl - Huntington's Disease Support Center
I found out it was better to know, yes you do know whats ahead of you, but if you do know you cant make plans do stuff you want to do enjoy every minute while its ok. I could see my partner was showing sighs for a couple of years things i noticed but not him( i watched my partners mum die of huntingtons and im fully aware of the future, but i have a certain calm now focused on looking after my maby birdgirl - Huntington's Disease Support Center
I can understand u feeling like that, but its all part of the condition you dont know whats round the corner, keep strong kellieby birdgirl - Huntington's Disease Support Center
vapourizers can be used which takes out the harmfull stuffby birdgirl - Huntington's Disease Support Center
im just starting to have that worry, and dont know how to put it to my hubby, i know his reactions are not as quick as they used to be and im really worried about him driving, he has not driven for about a year,as the car needed stuff done to it to get it road worthy. I have the money now to do it, and my hubby is very keen to get on the road,and i dont know how to tell him im not happy..... heby birdgirl - Huntington's Disease Support Center
thank goodness hes back safe kellieby birdgirl - Huntington's Disease Support Center
that what i went through hun i call it mind racing going ova the same stuff and no matter how hard you try it doesnt stop they gave me seroquil, and it did stop the mind racingby birdgirl - Huntington's Disease Support Center
HI my names kellie My patrtner of 20 years has huntingtons, he showed sighs about 3 years ago but we did the test last december and it was positive as we expected. His mum passed away at 47 and his grandad also passed away with huntingtons. We live in New Zealand, I work full time at present but not sure how long i can do this...... as i can see in the next few years I will have to become are fuby birdgirl - Huntington's Disease Support Center
My husband takes seroquil he was diagnosed at the beginning of the year, we had so may issues with not being able to sleep this has worked wonders for the sleep issues.by birdgirl - Huntington's Disease Support Center