Steve Ireland,

Were you able to get any traction for your idea "Imagine the Perfect Huntington's Disease Family Care Center" ?

Imagine taking the lessons learned, using interviews, observations, participation from across the community -folks in North Carolina, Philadelphia and Georgetown MedStar come to mind - rather than force feeding an academic concept of what is needed - may not be perfect but it could help.

Fred Lothrop

I am not sure if I belong here, but my neurologist has suggested seeking support with people who have +HD. I have tested _HD, however I do have the symptoms that are typical of this disorder. I have symptoms of chorea that affect my balance and coordination. I have also exhibited mild to moderate cognitive problems. Has anyone else ever heard of this? I was told that it is a very rare disease and is called HD-like chorea.