Huntington Disease Lighthouse Families

For HD families ... by HD families
 

Marsha and Convention Notes

Posted by Susie 
Marsha and Convention Notes
June 22, 2000 08:19AM
Marsha, I want to take this time to thank you for your note taking. It is nice to be able to know what was going on at Convention since some of us couldn't go. And the pictures are great! Thank you so much Marsha!

I also want to thank Cristy, Lynn and Steve for developing the HDAC. Very informative for others as well. Together you have come up with something that pHD, JHD, At Risk and caregivers can use as an effective tool to help themselves. Or for a family member or friend to help with the progression of HD.

I feel that everyone needs will be met here and please keep up the good work.

Susie
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