Huntington Disease Lighthouse Families

For HD families ... by HD families
 

The Emperor Has New Clothes

Posted by normzach 
The Emperor Has New Clothes
April 08, 2015 12:25PM
HDSA.org has been reorg'ed !!!!!!!!!

Haven't look at it in depth. but it is more busier, definitely not pHD friendly,; a focus on donating; available resources needs to be vetted; publications should be scrubbed to ensure currency and accuracy. My view of the HD world is parochial and limited, maybe a couple of old hands can look at it objectively and provide comments to the ivory tower,
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