Huntington Disease Lighthouse Families

For HD families ... by HD families
 

Personal Experience?

Posted by AStudent 
Personal Experience?
March 28, 2014 10:37AM
I might come off as a bit rude, possibly, but I am a student researching HD currently for a project. I am trying to find a personal experience to better understand it, basic facts, I do not think, will cut it. Anyone willing to share a personal experience with HD?

Thanks



Edited 1 time(s). Last edit at 03/28/2014 10:37AM by AStudent.
JFB
Re: Personal Experience?
March 28, 2014 10:53AM
Take a few minutes and READ a few threads.
[www.hdlf.org]
Maybe even make note of a particulair poster and search for there story.
for example click on my ID and select "show all post"
Maybe be a little more specific what are you interested in



Edited 1 time(s). Last edit at 03/28/2014 10:54AM by JFB.
Re: Personal Experience?
March 28, 2014 03:01PM
you are more than welcome to read my post on here...called "my story" I have several experiences for you to read about
Re: Personal Experience?
March 28, 2014 11:27PM
If there is one thing you can find on this website, it is personal stories! Click on community and go to blogs and family life. There are stories from people with HD, caregivers, people who have tested for the gene, etc.
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