Huntington Disease Lighthouse Families

For HD families ... by HD families
 

Work

Posted by Doctor1973 
Work
November 09, 2012 06:29AM
I am in the UK and wondering at what point do you tell your employer? I am very early stages so you may or may not realise.... No cognition problems as such, some minor movement issues. Anyone who has experienced employer reaction please let me know. I don't want this big secret but you have to consider the impact of opening up? I hope I have a good few years before I am not able to do things so well and as a highly educAted individual (PhD) I still have a lot to give (I hope)... Any advice appreciated.... Thank you....
Re: Work
November 09, 2012 02:03PM
I'd say keep it to yourself until it becomes a problem for YOU. My husband told his employer of the possibility, and for 6 years he was harassed at work to get tested. The everyday mistakes that we all make were attributed to the disease by the employer (who researched HD). Also, even though all say it isn't so, once the employer knows, so does the insurance company......
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