FAQ

What studies and clinical trials are now in progress, and how do I contact them?

HDAC Editorial Board, Wed, 04/11/2007

Answers to this question can be found through these links: New Clinical Trial Initiatives Published by the Huntington Study Group. What is a Clinical Trial? Published by the Huntington Study Group. Completed Clinical Trials. Published by the Huntington Study Group. CenterWatch Published by Center Watch. This is a site for various trials going on throughout the United States. The trials are listed according to the disease process. A Pilot Huntington At Risk Observational Study Published by
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Which methods and tools can improve communication skills?

HDAC Editorial Board, Wed, 04/11/2007

Answers to this question can be found through these links: Communications Skills Fact Sheet Published by the Huntington's Disease Association of the United Kingdom Communication Strategies Published by the Kansas University Medical Center. One Family's Way Published by the University of Chicago via Renee Davis's Web pages. A family's account of making a picture book to enhance communication.
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Why is good dental care so important?

HDAC Editorial Board, Wed, 04/11/2007

Answers to this question can be found through these links: The Importance of Dental Care in Huntington's Published by the Huntington's Disease Association, London.
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How can weight loss be slowed?

HDAC Editorial Board, Wed, 04/11/2007

Answers to this question can be found through these links: Guidelines For Meeting The Nutritional Needs Of Published by the Australian Huntington's Disease Society HD and Diets Published by the Huntington's Disease Association
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Can physical therapy and speech therapy help?

HDAC Editorial Board, Wed, 04/11/2007

Answers to this question can be found through these links: How the speech-language pathologist can help people with Huntingtons's Disease Published by the American Speech-Language-Hearing Association
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Where can I find a Treatment Center?

HDAC Editorial Board, Wed, 04/11/2007

Answers to this question can be found through these links: The University of Virginia Health System Published by the University of Virginia Health System. The CNI Movement Disorders Center Published by the Colorado Neurological Institute Centers for Excellence Published by Huntington Disease Society of America The Baltimore Huntington's Disease Center Published by the Johns Hopkins University School of Medicine. NYS Psychiatric Institute Published by the NYS Psychiatric Institute.
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How do I find a support group?

HDAC Editorial Board, Wed, 04/11/2007

Answers to this question can be found through these links: Huntington's Disease Society of America Click on "Getting Help" and then click on "Self-Help Groups". Next, locate the state in which you reside. Hopefully there will be a self help group located nearby. If not, check with your local hospital.
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