WORLD CONGRESS ON HUNTINGTON’S DISEASE September 12 – 15, 2009 The Westin Bayshore, VANCOUVER, BC Huntington’s disease (HD) researchers, clinicians, and members of the HD community from around the world are invited to participate in this unique meeting. The scientific program features presentations on recent advances in genetics and disease mechanisms of HD, recent approaches to developing experimental treatments, and the latest findings from clinical trials. The Congres

The HDSA Center of Excellence at UCLA presents: HOPE AND COPE: Living with HD while working towards a cure, an educational symposium for patients and families living with HD. Featured presenters will include: Dr. Susan Perlman, Dr. Yvette Bordelon, and Alice Wexler, author of “The Woman who Walked into the Sea.” In conjunction with the HDSA-LA Annual Membership Meeting Sunday, February 8, 2009 10:00 am – 3:00 pm The meeting will take place on the UCLA campus

Steve and I attended the HDSA convention, which was held in Pittsburgh, Pennsylvania from June 5-8, 2008. It was one of the more lively conventions with good news on the research front, activities for everyone, good turnout from a growing and active National Youth Alliance, and friendships made and renewed. The convention officially opened on Friday, June 6th, but we were there on Thursday so I could speak to the chapter leaders about the new HDSA website. I have the responsibility for the

Hi! Sunday, May 18th is the date for the 8th Annual Garbage Trail Walk to Massacree HD in Housatonic and Stockbridge in Western Massachusetts. The Walk is a 6.6-mile route of sites made (in)famous in Arlo's classic "Alice's Restaurant Massacree" including the old Stockbridge Town Dump that was "Closed on Thanksgivin'" and the site of the Stockbridge Jail where Officer Obie arrested Arlo. It begins at the Guthrie Center, site of the 1965 "Thanksgivin' Dinner That Couldn't Be Beat" and ends