steve i thought there used to be a place somewhere around here where i could pm you or marsha?... i tried to PM you on the regular place and it doesnt accept your name... .steve i am just sending my question to you through the email we use to update password... if you dont read that can you tell me here how i can reach you for a quick question?by skmf12 - Huntington's Disease Support Center
Oh I missed that Tyler... I have to go check that out... thank you...by skmf12 - Huntington's Disease Support Center
YAY !!!! Way to go will........... Let us know how it all goes thru the process will ya?by skmf12 - Huntington's Disease Support Center
THIS IS THE BEST NEW HOPE FOR OUR PEOPLE : Got alot of good stuff coming out since the HD Convention this weekend...by skmf12 - Huntington's Disease Support Center
.........FDA approves a new drug for symptoms of Huntington's disease........ Deutetrabenazine becomes the first new drug in a decade licensed by the FDA for symptoms of Huntington's disease By Dr Jeff Carroll on April 05, 2017 Edited by Dr Tamara Maiuri Significant news for the Huntington’s disease community this week, as the USA’s drug regulator, the FDA, has formally approved Austedoby skmf12 - Huntington's Disease Support Center
You have to watch the whole video... it isnt long just a few minutes... but wow... what it does to stop his movements is incredibleby skmf12 - Huntington's Disease Support Center
Deutetrabenazine for Huntington's disease: a positive trial but the FDA says no? Not exactly... A new scientific paper & lots of headlines about deutetrabenazine, a twist on treating chorea in Huntington's disease By Dr Peter McColgan on August 17, 2016 Edited by Dr Ed Wild A scientific paper declares positive results for a trial of deutetrabenazine in Huntington’s disease, but the heby skmf12 - Huntington's Disease Support Center
I am only posting this link because, the issues of how to administer some drugs thru the brain blood barrier may be solved... this article has described a new process being used in canada that has broken thru the barrier for the FIRST TIME. very interesting i wonder if this new process has been looked at by any HD scientists... the articles mention a possible use for alzheimers and parkinsons asby skmf12 - Huntington's Disease Support Center
This is just a website that shows various trials for huntingtons in the USA but it doesnt say for what drugs ... weirdby skmf12 - Huntington's Disease Support Center
Hi STEVEI and MARSHA, Just checking in to see how your doing... so what do you think, is there any hope coming our way soon?by skmf12 - Huntington's Disease Support Center
NICE.............. Hi Marsha.... very concise..... you are brilliant as always.... i actually understood that well....... thanks for dumbing it down for me........... Looking forward to some good news.............. I believe it will happen.... In the mean time, look forward to your next discussion on the subject of 'what's coming up'....... but mostly.... thank you....by skmf12 - Huntington's Disease Support Center
Study Sheds Light On The Origin Of Huntington's Disease Within The Brain April 29, 2014 | by Justine Alford Photo credit: UCLA. Mouse brain showing the cortex (pink) and striatum (yellow). Share12 Tweet1 4 Reddit0 1 Scientists from UCLA have used a mouse model to shed light on the brain regions targeted by the mutant gene which causes Huntington’s disease. In doing so they have suggesteby skmf12 - Huntington's Disease Support Center
MARSHA.... wow..... really really happy to hear your daughter is well.... one load off your back huh? ... living a normal life and marriage?...... way to go.... you guys have given alot.... time to live your own life for a minute.... good for you..... enjoy enjoy enjoy.... but still glad your here...by skmf12 - Huntington's Disease Support Center
Looking forward to the day when maybe... something like this might work for us........... p.s. It's been a long time since i've been here.... I see time still stands still for H D...... nothing new... no treatment still..... well we try and Live Strong while we can.... that's all we have .......... HI STEVEI .... *************************************************************************by skmf12 - Huntington's Disease Support Center
ok grandpa, i wouldn't expect anything but a 'successful' holiday from you two......... get well and remember the blog loves you both very much..... i was going to make some kind of "we are all so imbred here" kind of comment, but it might insult someone.....by skmf12 - Huntington's Disease Support Center
wow stevei............ your doing house cleaning?......reallly?..... thank you so much!..... what a great gift...... can you do my windows too?by skmf12 - Huntington's Disease Support Center
yes... Yes... YES........ I LOVE YOU ALL ......... especially now, when so many may have no families.... know that someone somewhere knows your out there.... i may not know your name, i may have never met you... but i know you are there, and i wish i could share hugs with you... but since i can't, think of me here trying to make contact over the world wide web............... FEEL THE LOVE DURby skmf12 - Huntington's Disease Support Center
MARSHA , it sounds really cool if nothing else... is this the google article you were looking for? ================================================================================= "Brain Cells Derived From Skin Cells For Huntington's Research Editor's Choice Main Category: Huntingtons Disease Also Included In: Stem Cell Research; Neurology / Neuroscience Article Date: 29 Jun 20by skmf12 - Huntington's Disease Support Center
besides the article i posted i found these all linked here, was it one of these?by skmf12 - Huntington's Disease Support Center
sorry i posted today huntington google article elsewhere....by skmf12 - Huntington's Disease Support Center
well there you go than stevei.... my phd tried it and loved it... said it was better for him... but apparently not everyone can figure that one out... nice try...by skmf12 - Huntington's Disease Support Center
wow noni that captcha test thing is so cool... thanks for posting.by skmf12 - Huntington's Disease Support Center
MARSHA.... i have been here a fair number of years, i may not post anymore, but i visit here to find out whats going on...I almost drowned in grief at the begging of this journey I couldnt function in the beginning. i found EVERYTHING i needed here to SURVIVE... you already know you are the anchor that keeps us all sane... do what you have to do, but just dont leave us alone....by skmf12 - Huntington's Disease Support Center
WHEEEEEW....thank goodness... i got tired of you guys shackin up... IT FEELS GOOD DOESNT IT? well it looks good on you guys.... ENJOY!!!!!!by skmf12 - Huntington's Disease Support Center
ok, some of you may not like my answer....but..... trust me, short of moving immediately, ITS YES ON THE POLICE, THAT SHOULD HAVE BEEN DONE IMMEDIATELY, There has to be a public trail, or you cannot prove that its ongoing and you did all you could, incase of a situation.... BUT.... here is what you should do..... TAKE YOUR DAUGHTER TO A MARTIAL ARTS CLASS... I RECOMMEND 'KRAV MAGA'.. myby skmf12 - Huntington's Disease Support Center
ummm i know this is for alzheimer, but is this drug anything hd could use? hope this website works, sorry if it doesntby skmf12 - Huntington's Disease Support Center
MARSHA, Everyone has seen the video on their local news for "BRAIN IN A BOX", the little girl they showed on my news had multiple sclerosis, and they showed her walking without the device, and she had issues walking. than they showed her walking with the device, and she walked great. they said it has a little ummm, like a timer, that sends messages to the nerves and that compby skmf12 - Huntington's Disease Support Center
MAREE, there is alot to be freaked out about... but even if you have hd... THERE IS LIFE AFTER HD.... this forum talks about alot of 'quality of life' things you can do for yourself now... food, exercise, supplements, ect ect ect... you know your family may be freaking out more than you are, and if they are, they can be projecting onto you... if you have been having temper issues arounby skmf12 - Huntington's Disease Support Center
P A R T A Y!!!!! .....HAVE A JOYFUL DAY....by skmf12 - Huntington's Disease Support Center