Just wondering if anyone on the site is involved in any clinical trials? I am interested in signing up if I can . Thanks PKby PK - Huntington's Disease Support Center
I have started having trouble with night driving. Was wondering if anyone has any suggestions for helping besides not driving at night. PKby PK - Huntington's Disease Support Center
Sound like good news thanks for sharing that.by PK - Huntington's Disease Support Center
Will, You said the trial that you are participating in will be going for 2 years?by PK - Huntington's Disease Support Center
Did u see the news that the drug trials in England are finished. What does that mean for the folks here.?by PK - Huntington's Disease Support Center
Thanks for posting that!by PK - Huntington's Disease Support Center
Just wondering if there is anything promising on the horizon as far as research and drug trails. I'm getting pretty discoursed when I think about my future and what in store for me? Pkby PK - Huntington's Disease Support Center
I passed the mental evaluation great, I couldn't spell world backwardsby PK - Huntington's Disease Support Center
Thanks Will that helps a lot !by PK - Huntington's Disease Support Center
My doctor is going to do a mental evaluation soon. Has anyone had this done and do you know what is involved. Thanksby PK - Huntington's Disease Support Center
I am having some memory testing done soon. What can I expect them to ask during the exam?by PK - Huntington's Disease Support Center
I am having an EMG next week has anyone had this test done what is involved Thanks Pkby PK - Huntington's Disease Support Center
I have a chiropractor that is helping me with diet and supplements. She wants me to follow Dr Terry Wahls book and program have you heard of her?by PK - Huntington's Disease Support Center
Will, Did your doctor give you this list of supplements. Just wondering how you arrived at this list Pamby PK - Huntington's Disease Support Center
I talked to a lawyer andi can't file a suit based on this information I don't qualify for SS disability because I haven't gotten enough work credits Not sure what I can do to make money I just turned 61 Any suggestionsby PK - Huntington's Disease Support Center
The only meds I'm on is Paxilby PK - Huntington's Disease Support Center
I have been teaching preschool a three year old class this year. I have had a few falls at home that resulted in minor injuries. My employer doesn't want me to return next school year because they are afraid of being held liable if I fell at work Any comments?by PK - Huntington's Disease Support Center
Is anyone following a certain diet that they have found helpful. I have been going to a doctor she wants me to try the Wahls paleo diet.by PK - Huntington's Disease Support Center
I have a CAG count of 41 and am 58 years old. I was diagnosed with hd 3 years ago and keeping things under control with supplement. Diet and exercise. My question, I have met someone we have gone out a few times . Wondering if based on my medical issues I should stop seeing him ? How would you explain the disease to someone? My physical symptoms are not obvious except to a Dr. Pamby PK - Huntington's Disease Support Center
Guess I am wondering if there is a way to die with dignityby PK - Huntington's Disease Support Center
Hi, I am in a similar situation. In the beginning stages with no one to help. I am divorced and my daughters live close to me but don't have time to help me.by PK - Huntington's Disease Support Center
Has anyone heard any feedback about a Christian medical sharing plan. Rates are good but pre existing is not covered until 65 and Medicare kicks in. I am 58 in early stage and still functioning pretty well so since there is no treatment at this time what r thought a about not being covered for Hby PK - Huntington's Disease Support Center
I was diagnosed 3 years ago as starting to show physical signs of hd. I want to know if impairment of judgement and reasoning corresponds with physical symptoms or does each person veryby PK - Huntington's Disease Support Center
Hi Everyone, I am fortunate to be able to work out with a trainer at my gym. How would you suggest I tell them that as an early HD person I am not "norma" and how to plan my workouts different from others because of the illness. Thanks, Pamby PK - Huntington's Disease Support Center
Thanks that was really good information. You have to have a dog certified to use in stores,etc.by PK - Huntington's Disease Support Center
Do you now of any one who has a service dog to assist them with HD symptoms? Thanks, Pamby PK - Huntington's Disease Support Center
I am very sorry you are facing this decision. I was in the same place as you a few years ago with my mother, I realize you will miss your mom. At this point I think you have to decide if you are keeping her alive for your own sake or for hers? Did your mom express what her wishes? Praying for you! Pamby PK - Huntington's Disease Support Center
My reponse to this would be if you really love this person don't let the testing issues get in the way. The Grandmother did not get sick until her 70's and the dad's CAG is 40 so I think time is on your side to find a cure before it effects you. I agree that testing now can negatively effect medical records too. If he came from a family with younger onset, I would be more concerned. Pamby PK - Huntington's Disease Support Center
Hi! I am in a position to be able to remodel my bathroom soon. Looking towards the future and the possibility of being in a wheelchair someday, anyone have any suggestions or ideas of what you have done or would have done if you had the chance? Thanks! Pamby PK - Huntington's Disease Support Center