I?m sorry your son seems to be showing symptoms. There usually is an inverse relationship between the CAG number and age of onset. That being said, there are many other factors for age of onset that are being found. My husband is in his 60?s and is having the mental health changes (no physical signs such as chorea) although maybe some very slight changes with his driving (acceleration a bit choppby eve - Huntington's Disease Support Center
My hubby takes blueberry pills, micronized creative and high potency/ quality fish oil as well as a multivitamin. I don?t think any of these things have been proven but they also aren?t hurting. Exercise is important. Will Brown has good posts on here about supplements. Try going through old posts by using the search feature.by eve - Huntington's Disease Support Center
What study or studies were you thinking about? We aren?t involved in any at this time. I copied 2 links to two that give me much hope. I?m wondering if my husband might be interested in the one that has to do with a bunch of spinal injections. I?m going to ask him. He?s not really comfortable around medical things and he is very sensitive to touch, so not sure he could do it. It sounds pby eve - Huntington's Disease Support Center
What study or studies were you thinking about? We aren?t involved in any at this time. I copied 2 links to two that give me much hope. I?m wondering if my husband might be interested in the one that has to do with a bunch of spinal injections. I?m going to ask him. He?s not really comfortable around medical things and he is very sensitive to touch, so not sure he could do it. It sounds pby eve - Huntington's Disease Support Center
Sally, I too don't visit here as often. I don't do facebook, but maybe some of the people in this message thread have moved to that? Sadly I'm sure this topic of divorce is very common. I've thought about it too. My husband has developed anger issues. My son has some issues as well and sometimes it is hell around here. But my husband has never become physically abusive laying hands on me orby eve - Huntington's Disease Support Center
Sally, I too don't visit here as often. I don't do facebook, but maybe some of the people in this message thread have moved to that? Sadly I'm sure this topic of divorce is very common. I've thought about it too. My husband has developed anger issues. My son has some issues as well and sometimes it is hell around here. But my husband has never become physically abusive laying hands on me orby eve - Huntington's Disease Support Center
Thank you both for sharing your stories. When I feel frustrated with my hubby, I will think about your posts. I will also think how there is only so much time left and to try to count the blessings instead of focusing on trivial things. He is starting to become symptomatic mentally, but takes very good care of himself, so we have hopefully a lot of time left. I'm not at a caregiver stage yeby eve - Huntington's Disease Support Center
I?ve heard L-carnitine has shown promise of helping Alzheimer patients. Does anyone know of any evidence that it maybe beneficial for individuals who are HD+ ?by eve - Huntington's Disease Support Center
I have a feeling the pain is largely due to the rheumatoid arthritis. That is a nasty painful disease. I know there was one case study of a marathon runner who started developing pain and then turned out to be HD positive. But Will (who?s an amazing athlete on this forum) runs all the time and seems to do just fine. I?m otherwise not aware of HD itself causing actual painby eve - Huntington's Disease Support Center
I have a feeling the pain is largely due to the rheumatoid arthritis. That is a nasty painful disease. I know there was one case study of a marathon runner who started developing pain and then turned out to be HD positive. But Will (who?s an amazing athlete on this forum) runs all the time and seems to do just fine. I?m otherwise not aware of HD itself causing actual painby eve - Huntington's Disease Support Center
Thanks Will for answering my question and for being involved in research. I hope you are receiving the drug and also hope it works wellby eve - Huntington's Disease Support Center
Is anyone able to explain the differences between the drug being studied in the Signal study and the Ionis drug?by eve - Huntington's Disease Support Center
Please keep us updated, Will. I know you will! Good luck and thank you for doing this!!!by eve - Huntington's Disease Support Center
I hope someone can help with answers for you.by eve - Huntington's Disease Support Center
Howard, sorry this is a belated sorry for your loss. I haven't been on this site for a long time, but I registered as a user quite awhile ago. I remember being so impressed with your compassion, wisdom and determination to do everything you could for Allison. I believe you've been an inspiration to many and your wise advise has helped so many. As Marg stated, you deserve a rest. Be the very bestby eve - Huntington's Disease Support Center
make sure your prescription is up-to-date. Ask your eye doctor if you could have a separate pair of glasses that are just for driving. Maybe he/she will put a little bit of extra minus power to help with that. The no-line bifocals aren't always the best for driving at night. Also make sure that you don't have any eye diseases...get a thorough check-up with a good ophthalmologistby eve - Huntington's Disease Support Center
I haven't been on this site for awhile. I agree with you that this is very frustrating! This shows so much promise. I understand, though, how the companies have to be careful with their trials. Also the USA is very litigious so it's probably one reason things move so slowly. If I knew this was available to anyone, I would fly overseas to get it. I am eagerly awaiting it's release, but fear it miby eve - Huntington's Disease Support Center
Yes I think Eric R is right it's isoflorine (sp?). I think it's an older anesthesia, but good to know that it's not a good one for HD patients. I have it listed as my husband's "allergies" along with ritalin and reglan. Not sure if these are spelled correctly!by eve - Huntington's Disease Support Center
I was just thinking the same thing. I think there are some good research/new news sites that I will investigate. I usually just come on here every so often. It is my one stop for info, but I also know it's best for support. I think I will also branch out into some other reputable sources for info. If anyone has any good resources, please feel free to postby eve - Huntington's Disease Support Center
I think I've heard that the University of Wisconsin Madison medical was just certified (is that the right word) a Huntington's Center of Excellence.by eve - Huntington's Disease Support Center
Wow! I didn't know about this study going on. Very exciting.by eve - Huntington's Disease Support Center
My son takes Valerian which is a "natural" supplement. Do you think that's okay? I suppose it also depends on if the "natural" pills are not adulterated with anything else.by eve - Huntington's Disease Support Center
Just thought I'd share this that I saw today. Not sure if this has any similarities to HD, but I love hearing good news about research making advancements in understanding and hopefully that will eventually led to more treatment options and perhaps cures for neurological disorders.by eve - Huntington's Disease Support Center
I'm sorry I don't know about any of those being used with HD. I will say that I've heard Risperidone is good for younger people and also Serequel (sp?). But I'm not a doctor and I could be wrong.by eve - Huntington's Disease Support Center
I'm hoping someone with experience will answer this to help guide you. Maybe there's some guidance on earlier posts if you look in the "search" option.by eve - Huntington's Disease Support Center
My son (who is not a teenager yet) is currently in an inpatient psych unit. The psychiatrist is thinking it might be a good idea to test him to see if he has the HD gene. I agree especially due to medication issues. But I also feel how will this impact his life if it's positive. It probably doesn't make sense to get long-term care insurance for a young kid, does it? Anything other thoughts oby eve - Huntington's Disease Support Center
Thanks for responding to my post, Howard. I am going to check out Allison's and your story.by eve - Huntington's Disease Support Center
I haven't posted for quite a long time. I had to take a break for awhile. Now I'm back asking for help. There are a lot of very smart people on this site so I hope I can get some answers. My hubby has CAG of 41, so our son (not a teenager yet) is at risk. He was just admitted to our local inpatient psych unit for behavioral problems at school (also home). He was diagnosed at a young age withby eve - Huntington's Disease Support Center
I am in total awe (as usual when it comes to Will)!by eve - Huntington's Disease Support Center
Not I, but just watched the Hobbit movies and the breath taking beauty of New Zealand makes me want to visit! I hope you hear from someone there to guide you for services etc. Maybe you'll have to be the trail blazer.by eve - Huntington's Disease Support Center