Hello everyone, Kelly B has posted a new article about living positive with HD. You can get to it from the home page or you can click on the following link to go directly to it. Happy Holidays from Kelly Bby SteveI - Huntington's Disease Support Center
For those of us who follow Will's approach to living life large - essentially creating positive life experiences for himself and others regardless of his HD status - he has contributed another blog post that I am sure everyone will enjoy. Click the link to go directly to it. >> Will's Iwo Story.by SteveI - Huntington's Disease Support Center
I hope everyone achieves their goals for 2016. Just don't forget to sign your checks with 2016! Best wishes to all. Steveby SteveI - Huntington's Disease Support Center
Kelly has been providing insight into some of the experiences of those that are HD+ and has posted another blog entry on this site found at Thanks Kelly.by SteveI - Huntington's Disease Support Center
Wow! A difference of opinion. It's been ages. This almost reminds me of the good old days (pre FaceBook). Do you realize how many years it has been since I've had to lock a thread? Too bad it's just on the topic of a prayer thread. While Barb makes some excellent points about the effectiveness of a prayer thread, it is certainly okay with Marsha and myself that a prayer thread be started.by SteveI - Huntington's Disease Support Center
That is correct. In fact there is a minimum amount that each board member is required to contribute. When I joined the board it was voluntary and later became required. Only the staff receive a salary. HDSA offers to reimburse the expenses of board members when they are required to be fly somewhere but I'm pretty sure that most board members just absorb it. The executive board is required toby SteveI - Huntington's Disease Support Center
I don't know much about the trial just yet.by SteveI - Huntington's Disease Support Center
I just wanted to make sure that everyone here was aware of the clinical trial. "The first human clinical trial for a groundbreaking new drug that has the potential to turn off the gene that causes Huntington’s disease will get underway in Vancouver this year, says a University of B.C. researcher." We're pretty excited about this.by SteveI - Huntington's Disease Support Center
I agree and will be happy to never see another snowflake for at least 9 months.by SteveI - Huntington's Disease Support Center
Awesome! Congratulationsby SteveI - Huntington's Disease Support Center
Confused and disorganized sounds like me.by SteveI - Huntington's Disease Support Center
Hi Fred, I haven't listened to the video yet, but due to your interest I might have to actually listen to it. Thanks a lot buddy. What is your reaction to the message?by SteveI - Huntington's Disease Support Center
The symptoms you list are inconclusive and could be due to stress, depression, or anxiety of being in an at risk situation. You didn't say what his CAG was so I'm assuming he hasn't tested. As far as insurance goes you might try checking with a MetLife agent. They always have a booth at HDSA and always talk about having something for HD families. However, I don't have any personal experienceby SteveI - Huntington's Disease Support Center
Hi Jaclyn. We are grateful (and often relish) the small improvements that make things a bit easier. I'm glad you are finding a bit of relief in this area.by SteveI - Huntington's Disease Support Center
Well, I would recommend contacting Gerleine Annette Walden Schoonover. She is on Facebook (under that name) and last I heard is still a prime player in HD activities in the San Antonio area. So if you are looking for contacts she is a good place to start. She is an awesome lady.by SteveI - Huntington's Disease Support Center
Kelly posted a lovely personal blog entry about her older sister who recently passed from Huntington's Disease. You'll find it via the home page www.hdlf.org or a direct link to the article is To My Newest HD Angel Steveby SteveI - Huntington's Disease Support Center
Hi Diane Welcome to HDLF. You are officially started. : Steveby SteveI - Huntington's Disease Support Center
Marsha and I hope that everyone had a very Merry Christmas or at least survived it. We spent most of the day with the grandkids so we had an awesome day. Cheers to all.by SteveI - Huntington's Disease Support Center
Maybe you should have slammed a few cups of blueberries the day before the study.by SteveI - Huntington's Disease Support Center
MaryAnn Emerick on how Huntington's Disease has affected her family and the push for HD Parity Act on Capitol Hillby SteveI - Huntington's Disease Support Center
I'm continuing to make progress as time allows and in addition to contemplating my navel I was wondering if there was any value in migrating the private messages history. I tend to think not. So unless someone can convince me otherwise then the historical record of private messages will be dropped during migration. Of course, current phorum posts will be migrated along with all users thatby SteveI - Huntington's Disease Support Center
There are actually 4 people whose "last activity" is dated 2/7/2036 (smiling_sara, howard, Will, and Eric). This comes from the current phorum software which I am not going to touch. But when I migrate the current posts to the new forum I will make sure that the bad date is corrected. Thanks for letting me know.by SteveI - Huntington's Disease Support Center
Of course, I've already "broke" the live site as part of this effort (but spotted the problem and resolved it this morning). So if anyone sees something that was working but is no longer working please post it on this thread. I'll check it out. Thanks.by SteveI - Huntington's Disease Support Center
Thanks for the support. I will probably ask a few kind souls to play around with the new version in a sandbox that I will set up. This will be to make sure that it runs smoothly enough to roll out of the shop. As always there will be some tuning that needs to be done once it hits the street.by SteveI - Huntington's Disease Support Center
I'm finally finishing up some projects for my company that have consumed me for the last couple of years, so I'm starting to find some time to refocus my attention back to the hdlf web site. I'm way behind on upgrades. A first for me was that I even received a couple of emails from the Drupal software development team telling me that they would like me to upgrade asap. So "feeling the preby SteveI - Huntington's Disease Support Center
Enjoy the sponsored ads on Facebook dear.by SteveI - Huntington's Disease Support Center
The link that Dusty provided in her first post is a link to a PDF. Click on it and then from there you can save it if you'd like.by SteveI - Huntington's Disease Support Center
HDSA provided an update on what they are doing in a PDF document they published earlier. I've copied the summary from that document here which I think might explain what's going on. Conclusion The HDSA Center of Excellence program embodies HDSA’s commitment to providing high quality multidisciplinary care and broad research opportunities to the HD community - “care and cure.” Buildinby SteveI - Huntington's Disease Support Center
Excellent pdf! Grab it now and share it with your dentist. Thanks Dusty.by SteveI - Huntington's Disease Support Center