Huntington Disease Lighthouse Families

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HERE IT IS .... HD BUZZ POSTED UPDATE

Posted by skmf12 
HERE IT IS .... HD BUZZ POSTED UPDATE
June 27, 2017 03:25PM
THIS IS THE BEST NEW HOPE FOR OUR PEOPLE :

Got alot of good stuff coming out since the HD Convention this weekend...

[en.hdbuzz.net]
Re: HERE IT IS .... HD BUZZ POSTED UPDATE
July 01, 2017 03:41PM
Encouraging news, indeed!
Re: HERE IT IS .... HD BUZZ POSTED UPDATE
November 09, 2017 11:35AM
October 15, 2017 there was an update on hdbuzz. Hope you saw it.

Very encouraging, open label extension on the trial !!
Re: HERE IT IS .... HD BUZZ POSTED UPDATE
November 13, 2017 04:38PM
I was screened a week ago for the Signal gene therapy trial at Duke. It will last nearly two years if I'm accepted. I think I have a good chance. I've aged out of many trials, but not this one. Age 71 was no problem!

Will
Re: HERE IT IS .... HD BUZZ POSTED UPDATE
December 10, 2017 07:33PM
YAY !!!! Way to go will........... I'm your cheerleader

Let us know how it all goes thru the process will ya?
Re: HERE IT IS .... HD BUZZ POSTED UPDATE
December 10, 2017 07:35PM
Oh I missed that Tyler... I have to go check that out... thank you...
Good one!
PK
Re: HERE IT IS .... HD BUZZ POSTED UPDATE
December 13, 2017 11:39AM
Did u see the news that the drug trials in England are finished. What does that mean for the folks here.?
Re: HERE IT IS .... HD BUZZ POSTED UPDATE
December 13, 2017 05:03PM
Patience will be needed. A much larger trial will start in the US to support the European results. When that is successful, the FDA will approve a roll-out. The very good news is that Roche's money is behind this.

Will
PK
Re: HERE IT IS .... HD BUZZ POSTED UPDATE
December 13, 2017 07:46PM
Will,

You said the trial that you are participating in will be going for 2 years?
Re: HERE IT IS .... HD BUZZ POSTED UPDATE
December 14, 2017 08:07AM
Actually it will be 18 months after screening. If accepted I'll be in Cohort B. Here's a brief description. The consent document ran 25 pages. [huntingtonstudygroup.org]

Will
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