Your English is fine. I'm gene positive, CAG 40 with no symptoms at age 70. I took Trehalose for about 10 years, but in a much smaller dose - maybe 5 grams once a day. Something worked, but I think it was my exercise (running) and other supplements. I have added Prevagen about a year ago and dropped Trehalose entirely recently.
Even a very small amount caused gastrointestinal problems for me. My bowels have thanked me! Here's what I take now.
Huntington’s Disease Specific
• CON-CRET Creatine HCL one capsule daily 750mg (Amazon.com)
• Wild Blueberry Concentrate - equivalent of a cup of berries – morning (Brownwoodacres.com) 2 capsules
• Pomegranate Concentrate – 2 capsules - equivalent of one fruit – morning (Brownwoodacres.com)
• Fish Oil capsules - 3 a day with meals - 1,800mg EPA total (Dr Tobias Optimum Triple Strength Fish Oil from Amazon.com)
• Vit E - 400 IU – morning (Drugstore.com – all natural type)
• Prevagen 10 mg Apoaequorin from Drugstore.com Morning Started June 2015
• Multivitamin – morning (Drugstore)
• Vit C - 1,000mg – morning (Drugstore)
• Glucosamine sulfate - 1,000mg – morning (Drugstore)
• Calcium 650mg – morning (2 extra strength TUMS Smoothies) (Drugstore)
• Magnesium 250mg – morning (Drugstore)
• Testosterone Replacement Therapy – 60.75mg testosterone (AndroGel) daily – Not HD related. Started 2009.
• Low dose 81 mg aspirin – daily after surgery for peripheral artery disease December, 2015
• Atorvastatin (Lipitor) 10mg daily after surgery for peripheral artery disease December, 2015
i never heard about Prevagen. I did`t find anything about Prevagen and HD searching the internet.May it has an effect on this disease ?
why you choose especially this one?
Trehalose is sugar , I know it may a cause a lot digstiv issues.
My gut don`t tolarte sugar very well, so I may have to take a smaller dosage of trehalose and add another supplements on my list,
Will, I know that exercise is very important in HD,
I do running several times each week for half an hour .
Edited 3 time(s). Last edit at 04/08/2017 05:27AM by sarmiento.
She takes very few supplements. A teaspoon of trehalose in coffee once a day, liquid fish oil once a day, we use a dehydrated berry mix that is mixed with water.
It's a cocktail I mix up for her with dehydrated berries, antioxidant rich dehydrated leafy greens, liquid vitamin d and a crushed remefemine for menaupausal relief. About a mg of melatonin at bedtime although she has never slept well. She has had insomnia since forever.
I wish there was something more she could take. Try to keep our diets clean with home cooking.
Pete, just wondering, has your wife ever been confirmed as having restless leg syndrome? My wife had that and it appeared to cause restless bouncing about during sleep which eventually bounced from our bedroom as I couldn't sleep with all the activity. She was taking "Restful Legs" but has not been taking it since being admitted to nursing home, so I don't know if there was a placebo effect or not but she indicated that the holistic plant based Restful Legs helped her.
Sorry I am not much help here, just wondering if there is a clear distinction with HD related sleep issues versus restless leg syndrome. Not that we need more stuff to complicate matters... ugh.
To tell the truth, trehalose has been one of those things that I only take in spurts - like when I have the pills. I found it difficult to take the ground stuff from Brooklyn Premium, even though I have a sugar bowl full of it most times. Right now, I just take one tablet per day (100 mg).
The most important things I take are Blueberry IQ (1-2 tablets), Concret Creatine (1 tablet per day), Fish Oil or Krill oil (1 tablet a day), and I sometimes take turmeric (from Costco) if I'm feeling wealthy!
I was tested for HD 10 years ago, positive with a CAG of 42. At sixty two years of age, I really don't have any symptoms, and I take those three things BBIQ, Creatine, and Fish Oil religiously. I haven't found a doctor that will recommend any of these things yet! Most of them say, "What you take blueberry flavoring?"