Welcome Andy and Chanin! Thank you so much for the profiles, helps everyone to to know each other.

Hi Im jon, 25 from the south west. Like to say hello as a first post and hopefully speak to you all soon.

Hi Im jon, 25 from the south west. Like to say hello as a first post and hopefully speak to you all soon.

Looking at specialist care homes and nursing homes for people with Huntingtons.

Hey Jon, nice to meet you, look forward to chatting more

Well, having been slightly rude and posted a few times already I thought I'd better introduce myself!

I live with my partner, daughter and two step daughters on the outskirts of London in the UK. I'm 39 and was diagnosed with carrying the HD gene in April 2007. Best guess is that I'll be symptomatic in my late 50s, as my mum (63) is in early stages. I've posted a load of nonsense on the HDA forum over the past 6 months or so, where I've been on the receiving end of some VERY sound advice from Eric; thanks mate! Now I'm dipping my toe into the forum on your side of the pond!

I'm sure in the future I'll be tapping into this forum for knowledge and advice, neither of which seem to be lacking here!

TTFN

DH

Welcome Jon and DH. I'm sure you'll like it on this board. A bunch of truly wonderful people connect here....it's the best place to be.

Welcome DH, and thanks so much for the profile, really helps with getting to know each other, glad you found us

Jason:
Hi my name Jason
I am 31 I tested positive a Year ago I have CAG 42 . I have no depression just Chorea my mom got it at 32 and died my sister has but she has not any symptoms yet my two aunts and both grandma and great grandmother died from it I am single no children I am computer geek.

Hi Jason, thanks so much for your profile, helps everyone out so much. It's nice to meet you and welcome

Hiya, My name is Crystal Mackell - My husband and I are from Ottawa, ontario.
I have CAG count of 44.My sister and I both have HD. My father is just placed into an medical nursing home and he is only 54. I cry evertime I leave him. My mom has given up talking care of him, but he is better off where he is.
I am a full time volunteer to the Ottawa Chapter here in Ontario.
I pray every spare moment I have for a cure or treatment for Huntington.
The bigges thing that has happen is my sister had a baby girl this summer. It is the blessing our family had in a long time.

Welcome Crystal

[www.hdyo.org]

Hey Crystal, thanks for your update, i updated your profile Awe, don't cry, your dad is doing good where he is now, sounds like you love him tons

Hi All,

My name is Joe and we live in the San Jose, CA area. I am 44 and have been married for over 21 years to my soul mate. She tested positive over 14 years ago (CAG 46) and is 44 now. We have 2 wonderful boys who are a Sr and Jr in high school.

My mother in-law is in the final stages of HD and in a health care facility in CT. My wife has 2 sisters one who is showing some moderate symptoms and the other has not been tested. In all we have 6 children "at risk".

My wife has been on very high doses of vitamins and supplements for 14 years. She more recently has been showing symptoms and we continue to fight this disease tooth and nail. She is still able to work and continues to exercise. We really feel the combination of exercise and suppliments has "stayed" the disease for this long. We hope this will continue.

I look fowrard to offering you any and all support I can.

Thanks to each of you for sharing. I feel like we are not alone.

Peace to you all.

Joe

Welcome Joe, and thank you for your mini-profile, helps us all remember each other



Edited 1 time(s). Last edit at 09/14/2008 04:08PM by Barb.

Hi-

My name is Jamie,

I live in CT just a stones throw from NYC with my wife who has HD, Our two wonderful daughters, plus my Mother who came over one day about 5 years ago to help with my wife and just kinda never left.
Thank goodness for that.

I used to go to the HDLighthouse and have come here since the switch
I tend to drag my feet on things,
but I don't think it's that bad I mean it only took me 7years to finally register here

anyway I just wanted to thank you all for the help and information you have provided

Jamie

Hey Jamie, glad you finally posted

I'm Ellie, 36,living in London and new to the forum. My 43 year old husband is at risk - his father has advanced HD. We are having our first hospital appointment on Monday and are not too sure what to expect.

Welcome Ellie,

You may find this site useful [www.hda.org.uk]

It's a UK forum.

Glad to have you here and hope your hubby is negative!

Matt.

[www.hdyo.org]

Hi Ellie, it's nice to meet you, welcome

Thank you all for your kind words and encouragement. Matt,I'll look into the UK site too - thanks for that.