Bitácoras

The time will come for each and everyone of us when we will need someone else to do our talking for us. A few months ago there was something that happened that made it clear I had gone from needing a part time advocate to a full time advocate. I relocated again last winter and had to go through the process of getting a new dentist and family doctor. I have run into problems in the past with dentists as they do not understand that I have to be medicated for them to be able to work on me.

There have been numerous stories of families struggling with issues caused by having one or more family members struggling with Huntington’s disease.  I’ve always wondered what an ideal support network might look like and if it’s possible to put together a self sustaining organization to service those needs.